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The Scientific World Journal
Volume 2014, Article ID 349151, 13 pages
http://dx.doi.org/10.1155/2014/349151
Review Article

The Patient’s Experience of the Psychosocial Process That Influences Identity following Stroke Rehabilitation: A Metaethnography

1Department of Physiotherapy, University of Birmingham, 52 Pritchatts Road, Edgbaston, Birmingham B15 2TT, UK
2School of Health and Social Care, University of Greenwich, London SE10 9LS, UK

Received 12 August 2013; Accepted 19 October 2013; Published 28 January 2014

Academic Editors: G. Caruso and Y.-P. Hou

Copyright © 2014 E. Hole et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. Excellence NIfHaC, Stroke Rehabilitation. Long-Term Rehabilitation after Stroke, National Institute for Health and Care Excellence, London, UK, 2013.
  2. Physicians RCo, Ed., National Clinical Guideline for Stroke, Royal College of Physicians, London, UK, 2008.
  3. Commission CQ, Supporting Life after Stroke, Care Quality Commission, London, UK, 2011.
  4. Office NA, Reducing Brain Damage: Faster Access to Better Stroke Care, National Audit Office, London, UK, 2005.
  5. Organisation WH, Atlas of Heart Disease and Stroke, World Health Organisation, Geneva, Switzerland, 2004.
  6. Ö. Saka, A. Mcguire, and C. Wolfe, “Cost of stroke in the United Kingdom,” Age and Ageing, vol. 38, no. 1, pp. 27–32, 2009. View at Publisher · View at Google Scholar · View at Scopus
  7. E. A. G. Joosten, L. DeFuentes-Merillas, G. H. de Weert, T. Sensky, C. P. F. van der Staak, and C. A. J. de Jong, “Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status,” Psychotherapy and Psychosomatics, vol. 77, no. 4, pp. 219–226, 2008. View at Publisher · View at Google Scholar · View at Scopus
  8. R. Campbell, P. Pound, C. Pope et al., “Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care,” Social Science & Medicine, vol. 56, no. 4, pp. 671–684, 2003. View at Publisher · View at Google Scholar · View at Scopus
  9. N. Mays, C. Pope, and J. Popay, “Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field,” Journal of Health Services Research and Policy, vol. 10, no. 1, pp. 6–20, 2005. View at Publisher · View at Google Scholar · View at Scopus
  10. M. Dixon-Woods, A. Sutton, R. Shaw et al., “Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods,” Journal of Health Services Research and Policy, vol. 12, no. 1, pp. 42–47, 2007. View at Publisher · View at Google Scholar · View at Scopus
  11. Dissemination CfRa, Systematic Reviews. CRD'S Guidance for Undertaking Reviews in Health Care York, Centre for Reviews and Dissemination, 2008.
  12. C. McKevitt, J. Redfern, F. Mold, and C. Wolfe, “Qualitative studies of stroke: a systematic review,” Stroke, vol. 35, no. 6, pp. 1499–1505, 2004. View at Publisher · View at Google Scholar · View at Scopus
  13. A. Soundy, B. Smith, H. Dawes, H. Pall, K. Gimbrere, and J. Ramsay, “Patient's expression of hope and illness narratives in three neurological conditions: a meta-ethnography,” Health Psychology Review, vol. 7, no. 2, pp. 177–201, 2013. View at Google Scholar
  14. D. Moher, A. Liberati, J. Tetzlaff, and D. G. Altman, “Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement,” BMJ, vol. 339, Article ID b2535, 2009. View at Publisher · View at Google Scholar · View at Scopus
  15. A. Darzi, “High quality care for all: NHS next stage review final report,” Tech. Rep., Department of Health, London, UK, 2008. View at Google Scholar
  16. Health Do., “High quality care for all: our journey so far,” Tech. Rep., Department of Health, London, UK, 2009. View at Google Scholar
  17. Health Do., “The NHS constitution for England,” Tech. Rep., Department of Health, London, UK, 2010. View at Google Scholar
  18. Health Do., “Equity and excellence: liberating the NHS,” Tech. Rep., London, UK, 2011. View at Google Scholar
  19. C. Williamson, Towards the Emancipation of Patients. Patient’s Experiences and the Patient Movement, Policy Press, Bristol, UK, 2010.
  20. R. Francis, “Report of the Mid Staffordshire NHS foundation trust public inquiry,” Tech. Rep., Staffordshire NHS Foundation Trust, 2013. View at Google Scholar
  21. P. Pound, K. Tilling, A. G. Rudd, and C. D. A. Wolfe, “Does patient satisfaction reflect differences in care received after stroke?” Stroke, vol. 30, no. 1, pp. 49–55, 1999. View at Google Scholar · View at Scopus
  22. G. Dowswell, T. Dowswell, J. Lawler, J. Green, and J. Young, “Patients' and caregivers' expectations and experiences of a physiotherapy intervention 1 year following stroke: a qualitative study,” Journal of Evaluation in Clinical Practice, vol. 8, no. 3, pp. 361–365, 2002. View at Publisher · View at Google Scholar · View at Scopus
  23. S. H. Staniszewska and L. Henderson, “Patients' evaluations of the quality of care: influencing factors and the importance of engagement,” Journal of Advanced Nursing, vol. 49, no. 5, pp. 530–537, 2005. View at Publisher · View at Google Scholar · View at Scopus
  24. K. Salter, C. Hellings, N. Foley, and R. Teasell, “The experience of living with stroke: a qualitative meta-synthesis,” Journal of Rehabilitation Medicine, vol. 40, no. 8, pp. 595–602, 2008. View at Publisher · View at Google Scholar · View at Scopus
  25. A. Häggström and M. L. Lund, “The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury,” Journal of Rehabilitation Medicine, vol. 40, pp. 89–95, 2008. View at Google Scholar
  26. A. Erikson, M. Park, and K. Tham, “Belonging: a qualitative, longitudinal study of what matters for persons after stroke during one year of rehabilitation,” Journal of Rehabilitation Medicine, vol. 42, no. 9, pp. 831–838, 2010. View at Publisher · View at Google Scholar · View at Scopus
  27. Organisation WH, International Classification of Functioning, Disability and Health (ICF), World Health Organisation, Geneva, Switzerland, 2013.
  28. R. Galvin, T. Cusack, and E. Stokes, “Physiotherapy after stroke in Ireland: a qualitative insight into the patients' and physiotherapists' experience,” International Journal of Rehabilitation Research, vol. 32, no. 3, pp. 238–244, 2009. View at Publisher · View at Google Scholar · View at Scopus
  29. L. Salisbury, K. Wilkie, C. Bulley, and J. Shiels, “'After the stroke': patients' and carers' experiences of healthcare after stroke in Scotland,” Health and Social Care in the Community, vol. 18, no. 4, pp. 424–432, 2010. View at Publisher · View at Google Scholar · View at Scopus
  30. Excellence NIfHaC, Scope: Patient Experience in Adult NHS Services: Improving the Experience of Care for People Using Adult NHS Services, National Institute for Health and Clinical Excellence, London, UK, 2010.
  31. J. M. Morse and J. L. Johnson, The Illness Experience: Dimensions of Suffering, Sage, Thousand Oaks, Calif, USA, 1991.
  32. M. S. Clark, “Patient and spouse perceptions of stroke and its rehabilitation,” International Journal of Rehabilitation Research, vol. 23, no. 1, pp. 19–29, 2000. View at Google Scholar · View at Scopus
  33. C. Yuill, I. Crinson, and E. Duncan, Key Concepts in Health Studies, Sage, London, UK, 2010.
  34. C. S. Ellis-Hill, S. Payne, and C. Ward, “Self-body split: issues of identity in physical recovery following a stroke,” Disability and Rehabilitation, vol. 22, no. 16, pp. 725–733, 2000. View at Google Scholar · View at Scopus
  35. J. P. Wood, D. M. Connelly, and M. R. Maly, “Getting back to real living: a qualitative study of the process of community reintegration after stroke,” Clinical Rehabilitation, vol. 24, no. 11, pp. 1045–1056, 2010. View at Publisher · View at Google Scholar · View at Scopus
  36. C. Haslam, A. Holme, S. A. Haslam, A. Iyer, J. Jetten, and W. H. Williams, “Maintaining group memberships: social identity continuity predicts well-being after stroke,” Neuropsychological Rehabilitation, vol. 18, no. 5-6, pp. 671–691, 2008. View at Publisher · View at Google Scholar · View at Scopus
  37. M. Bendz, “The first year of rehabilitation after a stroke—from two perspectives,” Scandinavian Journal of Caring Sciences, vol. 17, no. 3, pp. 215–222, 2003. View at Publisher · View at Google Scholar · View at Scopus
  38. J. Röding, B. Lindström, J. Malm, and A. Ohman, “Frustrated and invisible-younger stroke patients’ experiences of the rehabilitation process,” Disability and Rehabilitation, vol. 25, pp. 867–874, 2003. View at Google Scholar
  39. F. Cowdell and D. Garrett, “Recreation in stroke rehabilitation part two: exploring patients’ views,” International Journal of Therapy and Rehabilitation, vol. 10, pp. 456–462, 2003. View at Google Scholar
  40. H. Peoples, T. Satink, and E. Steultjens, “Stroke survivors' experiences of rehabilitation: a systematic review of qualitative studies,” Scandinavian Journal of Occupational Therapy, vol. 18, no. 3, pp. 163–171, 2011. View at Publisher · View at Google Scholar · View at Scopus
  41. G. P. Prigatano, “The importance of the patient's subjective experience in stroke rehabilitation,” Topics in Stroke Rehabilitation, vol. 18, no. 1, pp. 30–34, 2011. View at Publisher · View at Google Scholar · View at Scopus
  42. M. Dixon-Woods, S. Agarwal, B. Young, D. Jones, and A. Sutton, Integrative Approaches to Qualitative and Quantitative Evidence, Agency NHD, London, UK, 2004.
  43. M. Sandelowski, J. Barroso, and C. I. Voils, “Using qualitative metasummary to synthesize qualitative and quantitative descriptive findings,” Research in Nursing & Health, vol. 30, no. 1, pp. 99–111, 2007. View at Publisher · View at Google Scholar · View at Scopus
  44. E. Barnett-Page and J. Thomas, “Methods for the synthesis of qualitative research: a critical review,” BMC Medical Research Methodology, vol. 9, no. 1, article 59, 2009. View at Publisher · View at Google Scholar · View at Scopus
  45. M. C. Reed, V. Wood, R. Harrington, and J. Paterson, “Developing stroke rehabilitation and community services: a meta-synthesis of qualitative literature,” Disability and Rehabilitation, vol. 34, no. 7, pp. 553–563, 2012. View at Publisher · View at Google Scholar · View at Scopus
  46. A. Soundy, T. Kingstone, and C. Coffee, “Understanding the psychosocial processes of physical activity for individuals with severe mental illness: a meta-ethnography,” in Mental Illnesses—Evaluation, Treatments and Implications, 2012. View at Google Scholar
  47. R. Campbell, P. Pound, M. Morgan et al., “Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research,” Health Technology Assessment, vol. 15, no. 43, pp. 1–164, 2011. View at Publisher · View at Google Scholar · View at Scopus
  48. J. S. Sabari, J. Meisler, and E. Silver, “Reflections upon rehabilitation by members of a community based stroke club,” Disability & Rehabilitation, vol. 22, no. 7, pp. 330–336, 2000. View at Google Scholar · View at Scopus
  49. I. M. Proot, H. H. Abu-Saad, W. P. de Esch-Janssen, H. F. J. M. Crebolder, and R. H. J. Ter Meulen, “Patient autonomy during rehabilitation: the experiences of stroke patients in nursing homes,” International Journal of Nursing Studies, vol. 37, no. 3, pp. 267–276, 2000. View at Google Scholar · View at Scopus
  50. C. R. Burton, “Living with stroke: a phenomenological study,” Journal of Advanced Nursing, vol. 32, no. 2, pp. 301–309, 2000. View at Google Scholar · View at Scopus
  51. B. Gibbon, “Service user involvement: the impact of stroke and the meaning of rehabilitation,” International Journal of Therapy and Rehabilitation, vol. 7, pp. 8–12, 2004. View at Google Scholar
  52. A. Olofsson, S.-O. Andersson, and B. Carlberg, “‘If only I manage to get home I'll get better’—interviews with stroke patients after emergency stay in hospital on their experiences and needs,” Clinical Rehabilitation, vol. 19, no. 4, pp. 433–440, 2005. View at Publisher · View at Google Scholar · View at Scopus
  53. R. Morris, O. Payne, and A. Lambert, “Patient, carer and staff experience of a hospital-based stroke service,” International Journal for Quality in Health Care, vol. 19, no. 2, pp. 105–112, 2007. View at Publisher · View at Google Scholar · View at Scopus
  54. M. Mangset, T. E. Dahl, R. Førde, and T. B. Wyller, “‘We're just sick people, nothing else’:...Factors contributing to elderly stroke patients' satisfaction with rehabilitation,” Clinical Rehabilitation, vol. 22, no. 9, pp. 825–835, 2008. View at Publisher · View at Google Scholar · View at Scopus
  55. C. Ellis-Hill, J. Robison, R. Wiles, K. McPherson, D. Hyndman, and A. Ashburn, “Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke,” Disability & Rehabilitation, vol. 31, no. 2, pp. 61–72, 2009. View at Publisher · View at Google Scholar · View at Scopus
  56. A. Wottrich, K. Åström, and M. Löfgren, “On parallel tracks: newly home from hospital-people with stroke describe their expectations,” Disability & Rehabilitation, vol. 34, pp. 1218–1224, 2012. View at Google Scholar
  57. G. W. Noblit and R. Dwight Hare, Meta-Ethnography: Synthesising Qualitative Studies, Sage, London, UK, 1988.
  58. A. Malpass, A. Shaw, D. Sharp et al., “‘Medication career’ or “Moral career”? The two sides of managing antidepressants: a meta-ethnography of patients' experience of antidepressants,” Social Science & Medicine, vol. 68, no. 1, pp. 154–168, 2009. View at Publisher · View at Google Scholar · View at Scopus
  59. Health Do., “The NHS Plan: a plan for investment, a plan for reform,” Tech. Rep., Department of Health, London, UK, 2000. View at Google Scholar
  60. A. Malpass, H. Carel, M. Ridd et al., “Transforming the perceptual situation: a meta-ethnography of qualitative work reporting patients’experiences of mindfulness-based approaches,” Mindfulness, vol. 3, pp. 60–75, 2012. View at Google Scholar
  61. L. H. Doyle, “Synthesis through meta-ethnography: paradoxes, enhancements, and possibilities,” Qualitative Research, vol. 3, pp. 321–344, 2003. View at Google Scholar
  62. A. Tong, P. Sainsbury, and J. Craig, “Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups,” International Journal for Quality in Health Care, vol. 19, no. 6, pp. 349–357, 2007. View at Publisher · View at Google Scholar · View at Scopus
  63. N. Britten, R. Campbell, C. Pope, J. Donovan, M. Morgan, and R. Pill, “Using meta ethnography to synthesise qualitative research: a worked example,” Journal of Health Services Research & Policy, vol. 7, no. 4, pp. 209–215, 2002. View at Publisher · View at Google Scholar · View at Scopus
  64. S. Atkins, S. Lewin, H. Smith, M. Engel, A. Fretheim, and J. Volmink, “Conducting a meta-ethnography of qualitative literature: lessons learnt,” BMC Medical Research Methodology, vol. 8, article 21, 2008. View at Publisher · View at Google Scholar · View at Scopus
  65. D. Barnard, “Chronic illness and the dynamics of hoping,” in Chronic Illness from Experience to Policy, S. K. Toombs, D. Barnard, and R. A. Carson, Eds., Indiana University Press, Bloomington, Ind, USA, 1995. View at Google Scholar
  66. P. Conrad, “The experience of illness: recent and new directions,” in The Experience and Management of Chronic Illness, J. A. Roth, Ed., JAI Press, Greenwich, UK, 1987. View at Google Scholar
  67. S. Kaufman, “Illness, biography, and the interpretation of self following a stroke,” Journal of Aging Studies, vol. 2, no. 3, pp. 217–227, 1988. View at Google Scholar · View at Scopus
  68. W. Seymour, Bodily Alterations: An Introduction to a Sociology for Health Workers, Allen & Unwin, Sydney, Australia, 1989.
  69. C. E. Cutrona and D. Russell, “Type of social support and specific stress: toward a theory of optimal matching,” in Social Support: An Interactional View, I. G. Sarason, Ed., John Wiley & Sons, New York, NY, USA, 1990. View at Google Scholar
  70. D. E. Jacobson, “Types and timing of social support,” Journal of Health and Social Behavior, vol. 27, no. 3, pp. 250–264, 1986. View at Google Scholar · View at Scopus
  71. R. S. Weiss, “Transition states and other stressful situations: their nature and programs for their management,” in Support Systems and Mutual Help: Multi-Disciplinary Explorations, G. Caplan and M. Killilea, Eds., Grune and Stratton, New York, NY, USA, 1976. View at Google Scholar
  72. I. J. Gill, G. Wall, and J. Simpson, “Clients' perspectives of rehabilitation in one acquired brain injury residential rehabilitation unit: a thematic analysis,” Brain Injury, vol. 26, pp. 909–920, 1992. View at Google Scholar
  73. G. Dixo, E. W. Thornton, and C. A. Young, “Perception of self-efficacy and rehabiltation among neurologically disabled adults,” Clinical Rehabilitation, vol. 21, no. 3, pp. 230–240, 2007. View at Publisher · View at Google Scholar · View at Scopus
  74. J. Smith, A. Forster, and J. Young, “Cochrane review: information provision for stroke patients and their caregivers,” Clinical Rehabilitation, vol. 23, no. 3, pp. 195–206, 2009. View at Publisher · View at Google Scholar · View at Scopus
  75. A. Bandura, Social Foundations of Thought and Action. A Social Cognitive Theory, Prentice-Hall, Englewood Cliffs, NJ, USA, 1986.
  76. D. L. Feltz and C. D. Lirgg, “Self-efficacy beliefs of athletes, teams, and coaches,” in Handbook of Sport Psychology, R. N. Singer, H. A. Hausenblas, and C. Janelle, Eds., pp. 340–361, John Wiley & Sons, New York, NY, USA, 2nd edition, 2001. View at Google Scholar
  77. F. Pajdres, “Motivational role of self-efficacy beliefs in self-regulated learning,” in Motivation and Self-Regulated Learning—Theory Research and Applications, D. H. Schunk and B. J. Zimmerman, Eds., pp. 111–140, Taylor and Francis, Abingdon, UK, 2008. View at Google Scholar
  78. C. J. Barron, J. A. K. Moffett, and M. Potter, “Patient expectations of physiotherapy: definitions, concepts, and theories,” Physiotherapy Theory and Practice, vol. 23, no. 1, pp. 37–46, 2007. View at Publisher · View at Google Scholar · View at Scopus
  79. S. Guidetti, E. Asaba, and K. Tham, “The lived experience of recapturing self-care,” American Journal of Occupational Therapy, vol. 61, no. 3, pp. 303–310, 2007. View at Google Scholar · View at Scopus
  80. F. Jones and A. Riazi, “Self-efficacy and self-management after stroke: a systematic review,” Disability and Rehabilitation, vol. 33, no. 10, pp. 797–810, 2011. View at Publisher · View at Google Scholar · View at Scopus
  81. N. E. Mayo, S. Wood-Dauphinee, R. Côté, L. Durcan, and J. Calton, “Activity, participation and quality of life six months post stroke,” Archives of Physical Medicine Rehabilitation, vol. 83, pp. 1035–1042, 2002. View at Google Scholar
  82. A. Soundy, J. Benson, H. Dawes, B. Smith, J. Collett, and A. Meaney, “Understanding hope in patients with multiple sclerosis,” Physiotherapy, vol. 98, pp. 349–355, 2012. View at Publisher · View at Google Scholar · View at Scopus