Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review

Table 6

Compilation of the future directions for PPC programs or interventions gathered from the qualitative synthesis of the reviewed articles.

Category	Minimum essential elements
Tertiary attention	(i) Addressing all areas of the patient’s life that are affected; (a) Physical; (b) Emotional; (c) Psychosocial; (d) Educational; (e) Spiritual; (ii) Comprehensive individualized plan; (iii) Care and attention to the family; (iv) Accompaniment in decision-making; (v) Use of community services; (vi) Active role, promotion, and respect for the autonomy of pediatric patients; (vii) Consideration of their cognitive abilities; (viii) Early implementation; (ix) Training and preparation of the professionals involved
Educative inclusion	(i) Legal framework that adequately regulates the educative inclusion; (ii) Communication and collaboration between the services involved (health, education, community); (iii) Tailored strategies for inclusion (telepresence, medical accompaniment, etc.)
Awareness	(i) Need to deepen school-based palliative interventions
Effect on the QoL	(i) Facilitators; (a) Psychopedagogical care; (b) Promoting social relations with peers and role models for the development of their maturing skills; (c) Communication on issues of concern to them; (d) Effective inclusive education; (e) Empowerment; (f) Including elements of categories 1 and 2; (ii) Barriers; (a) Delay in diagnosis; (b) Delay in access to a PPC program; (c) Isolation; (d) Overprotection; (e) Lack of autonomy; (f) Not including elements of categories 1 and 2