|
| “I need” statement | %
important unmet needs | %
important needs |
|
| Financial support in order to provide my child with therapies, treatments, and care. (n/a) | 87% | 89% |
| To get a break from my responsibilities. (P) | 86% | 94% |
| To have the other children in my child’s after-school program understand my child’s special needs. (n/a) | 79% | 100% |
| To get enough rest or sleep. (P) | 79% | 96% |
| Help remaining hopeful about my child’s future. (P) | 79% | 85% |
| To have counseling for myself and my spouse/partner/child’s father. (P) | 78% | 69% |
| To have other family members understand my child’s problems. (n/a) | 77% | 94% |
| To have time to care for my own health needs (Note: additional question added to Modified FNQ. (P) | 76% | 90% |
| Weekend and after-school activities for my child with special needs. (C) | 74% | 87% |
| To be told if I am making good decisions about my child. (P) | 73% | 82% |
| To be physical active or exercise. (P) | 73% | 96% |
| To be shown what to do when my child is acting unusually or is displaying difficult strategies. (P) | 72% | 93% |
| To have my child’s therapies continue throughout the summer months and school breaks. (C) | 72% | 97% |
| Help dealing with my fears about my child’s future. (P) | 71% | 81% |
| To have help in deciding how much to let my child do by himself/herself. (P) | 71% | 80% |
| To spend time with my friends. (P) | 71% | 84% |
| To have help from family members taking care of my child. (P) | 70% | 78% |
| Information about special programs and services available to my child and my family. (n/a) | 70% | 96% |
| For my child to have friends of his/her own. (C) | 70% | 94% |
| To have time to spend alone with a spouse/partner/companion. (P) | 70% | 90% |
| For my child with special needs to have social activities other than with his/her own parents and siblings. (C) | 67% | 93% |
| To have consistent behavioral therapy for my child. (C) | 65% | 96% |
| To have help with housework. (P) | 65% | 76% |
| To be encouraged to ask for help. (P) | 65% | 82% |
| To be reassured that it isn’t uncommon to have negative feelings about my child’s strategies. (P) | 64% | 65% |
| To be told why my child acts in ways that are different, difficult or unusual. (P) | 64% | 79% |
| Q To have my questions answered honestly. (P) | 64% | 97% |
| For my other children’s friends to feel comfortable around my child. (n/a) | 63% | 88% |
| To have different professionals agrees on the best way to help my child. (n/a) | 61% | 93% |
| The children in my child’s classroom to understand that my child cannot help his/her unusual strategies and difficulties. (n/a) | 61% | 80% |
| For professionals working with my child to understand my child’s and family’s needs. (n/a) | 60% | 94% |
| To have my child’s teacher(s) understand his/her special needs. (P) | 58% | 93% |
| To have time to spend alone with my other children. (n/a) | 57% | 100% |
| My child’s doctor and dentist to have experience working with children like my child. (n/a) | 56% | 97% |
| To eat nutritious meals. (P) | 55% | 96% |
| To have counseling for my other children. (n/a) | 55% | 73% |
| To take a family vacation each year. (n/a) | 54% | 88% |
| To work with professional with experience with child similar to my child. (C) | 54% | 93% |
| To have professional to turn to for advice or services when my child needs help. (P) | 54% | 96% |
| To have consistent speech therapy for my child. (C) | 53% | 85% |
| To take a vacation without my child with special needs each year. (n/a) | 49% | 65% |
| To be shown that my opinions are used in planning my child’s treatment, therapies or education. (P) | 49% | 97% |
| To have information regarding my child’s therapeutic or educational progress. (P) | 47% | 100% |
| Q. Respite care for my child. (P) | 46% | 58% |
| Continuous services rather than only in times of crisis. (C) | 46% | 93% |
| To be actively involved in my child’s treatment and therapies. (P) | 44% | 99% |
| For professionals to be discrete when talking about my child while he/she is in the room. (C) | 43% | 71% |
| My child to have a teacher’s aide with him/her at school who has knowledge or experience working with children like my child. (C) | 42% | 83% |
| To go out to dinner with my family. (n/a) | 41% | 77% |
| To have my child’s teacher(s) understand his/her special needs. (C) | 40% | 94% |
| To be well educated about my child’s disorder so I can be an effective decision maker regarding the needs of my child. (P) | 39% | 100% |
| To have consistent occupational therapy for my child. (C) | 38% | 81% |
| To have my spouse/partner/child’s father agree on decisions about our child with special needs. (P) | 36% | 89% |
| My child’s school to set up a specialized education plan for my child. (C) | 32% | 100% |
| To have consistent physical therapy for my child. (C) | 30% | 49% |
| To be shown respect by the professional working with my child. (P) | 28% | 97% |
| To have professional working with my child to speak to me in terms I can understand. (P) | 25% | 97% |
|
