Table of Contents
Advances in Nursing
Volume 2015 (2015), Article ID 653624, 7 pages
Research Article

A Qualitative Study of Communication between Young Women with Disorders of Sex Development and Health Professionals

1Alder Hey Children’s Hospital NHS FT, Liverpool, UK
2University of Central Lancashire and Children’s Nursing Research Unit (UCLan), Alder Hey Foundation Trust, Brook Building 437, Preston PR1 2HE, UK

Received 18 November 2014; Revised 18 December 2014; Accepted 22 December 2014

Academic Editor: Violeta Lopez

Copyright © 2015 Caroline Sanders and Bernie Carter. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


Background and Objectives. Health communication is a critical aspect of care for both providers and recipients having a direct influence on engagement and outcomes. Communicating which in this context includes talking and listening in order to share information or support young women to understand their DSD can be difficult especially since the topic area is sensitive. Methods. In this qualitative study thirteen young women (aged 14–19 years) with a disorder of sex development who engaged with health care professionals were purposively recruited between 2011 and 2012 from three specialist centres across the United Kingdom. The young women either were interviewed or completed a diary about their experiences of communication with a range of health care professionals. An interpretative phenomenological approach was used to analyse these data. Results. By analysis of data the young women were able to clearly articulate the qualities and skills health professional needed in relation to communication. Two main categories focused on the duty in which professionals have to share information and their role in supporting young women to manage this information. Discussion and Conclusion. The study results revealed that these young women with a DSD expected to meet skilled professionals who could recognise the emotional aspects of dialogues in the short and longer term.