Autism Research and Treatment / 2017 / Article / Tab 3

Research Article

Support Needs and Coping Strategies as Predictors of Stress Level among Mothers of Children with Autism Spectrum Disorder

Table 3

Family needs questionnaire percentages ranked by important unmet needs.

“I need” statement%
important unmet needs
%
important needs

Financial support in order to provide my child with therapies, treatments, and care. (n/a)87%89%
To get a break from my responsibilities. (P)86%94%
To have the other children in my child’s after-school program understand my child’s special needs. (n/a)79%100%
To get enough rest or sleep. (P)79%96%
Help remaining hopeful about my child’s future. (P)79%85%
To have counseling for myself and my spouse/partner/child’s father. (P)78%69%
To have other family members understand my child’s problems. (n/a)77%94%
To have time to care for my own health needs (Note: additional question added to Modified FNQ. (P)76%90%
Weekend and after-school activities for my child with special needs. (C)74%87%
To be told if I am making good decisions about my child. (P)73%82%
To be physical active or exercise. (P)73%96%
To be shown what to do when my child is acting unusually or is displaying difficult strategies. (P)72%93%
To have my child’s therapies continue throughout the summer months and school breaks. (C)72%97%
Help dealing with my fears about my child’s future. (P)71%81%
To have help in deciding how much to let my child do by himself/herself. (P)71%80%
To spend time with my friends. (P)71%84%
To have help from family members taking care of my child. (P)70%78%
Information about special programs and services available to my child and my family. (n/a)70%96%
For my child to have friends of his/her own. (C)70%94%
To have time to spend alone with a spouse/partner/companion. (P)70%90%
For my child with special needs to have social activities other than with his/her own parents and siblings. (C)67%93%
To have consistent behavioral therapy for my child. (C)65%96%
To have help with housework. (P)65%76%
To be encouraged to ask for help. (P)65%82%
To be reassured that it isn’t uncommon to have negative feelings about my child’s strategies. (P)64%65%
To be told why my child acts in ways that are different, difficult or unusual. (P)64%79%
Q To have my questions answered honestly. (P)64%97%
For my other children’s friends to feel comfortable around my child. (n/a)63%88%
To have different professionals agrees on the best way to help my child. (n/a)61%93%
The children in my child’s classroom to understand that my child cannot help his/her unusual strategies and difficulties. (n/a)61%80%
For professionals working with my child to understand my child’s and family’s needs. (n/a)60%94%
To have my child’s teacher(s) understand his/her special needs. (P)58%93%
To have time to spend alone with my other children. (n/a)57%100%
My child’s doctor and dentist to have experience working with children like my child. (n/a)56%97%
To eat nutritious meals. (P)55%96%
To have counseling for my other children. (n/a)55%73%
To take a family vacation each year. (n/a)54%88%
To work with professional with experience with child similar to my child. (C)54%93%
To have professional to turn to for advice or services when my child needs help. (P)54%96%
To have consistent speech therapy for my child. (C)53%85%
To take a vacation without my child with special needs each year. (n/a)49%65%
To be shown that my opinions are used in planning my child’s treatment, therapies or education. (P)49%97%
To have information regarding my child’s therapeutic or educational progress. (P)47%100%
Q. Respite care for my child. (P)46%58%
Continuous services rather than only in times of crisis. (C)46%93%
To be actively involved in my child’s treatment and therapies. (P)44%99%
For professionals to be discrete when talking about my child while he/she is in the room. (C)43%71%
My child to have a teacher’s aide with him/her at school who has knowledge or experience working with children like my child. (C)42%83%
To go out to dinner with my family. (n/a)41%77%
To have my child’s teacher(s) understand his/her special needs. (C)40%94%
To be well educated about my child’s disorder so I can be an effective decision maker regarding the needs of my child. (P)39%100%
To have consistent occupational therapy for my child. (C)38%81%
To have my spouse/partner/child’s father agree on decisions about our child with special needs. (P)36%89%
My child’s school to set up a specialized education plan for my child. (C)32%100%
To have consistent physical therapy for my child. (C)30%49%
To be shown respect by the professional working with my child. (P)28%97%
To have professional working with my child to speak to me in terms I can understand. (P)25%97%

“I need” statement (P) indicates parent-focused need; (C) indicates child-focused need; (n/a) indicates neither parent- nor child-focused need.

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