Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder
Table 3
Unadjusted and adjusted odds ratios and adjusted prevalence for meeting criteria for each of the six quality indicators among CSHCN with and without parent-reported epilepsy/seizure disorder: National Survey of Children with Special Health Care Needs, 2009-2010.
Indicator
Unadjusted
Adjusteda
Adjusteda
OR (95% CI)
OR (95% CI)
% (SE)
Indicator 1: family shares in decision-making
Child has epilepsy/seizure disorder
0.93 (0.68–1.27)
1.11 (0.83–1.49)
72.4 (2.85)
Child does not have epilepsy/seizure disorder
Reference
Reference
70.3 (0.44)
Indicator 2: child receives coordinate, ongoing, comprehensive care within a medical home
Child has epilepsy/seizure disorder
0.61 (0.49–0.77)
0.76 (0.61–0.96)
37.7 (2.52)
Child does not have epilepsy/seizure disorder
Reference
Reference
43.2 (0.46)
Indicator 3: family has adequate insurance to pay for the services they need
Child has epilepsy/seizure disorder
0.89 (0.69–1.15)
0.98 (0.76–1.26)
60.1 (3.02)
Child does not have epilepsy/seizure disorder
Reference
Reference
60.6 (0.46)
Indicator 4: child is screened early and continuously for special health care needs
Child has epilepsy/seizure disorder
0.93 (0.73–1.19)
0.95 (0.74–1.21)
77.8 (1.99)
Child does not have epilepsy/seizure disorder
Reference
Reference
78.6 (0.39)
Indicator 5: community-based service systems are organized so the family can use them easily
Child has epilepsy/seizure disorder
0.52 (0.41–0.65)
0.65 (0.51–0.83)
55.8 (2.81)
Child does not have epilepsy/seizure disorder
Reference
Reference
65.5 (0.45)
Indicator 6: youth with special health care needs receive services necessary to make the transition to adult life
Child has epilepsy/seizure disorder
0.69 (0.49–0.98)
0.87 (0.59–1.28)
36.9 (4.22)
Child does not have epilepsy/seizure disorder
Reference
Reference
40.0 (0.70)
OR: odds ratio; CI: confidence interval; SE: standard error. Findings significant at P < 0.05 are bolded. Adjusted for age, race/ethnicity, gender, income, urbanicity, household language, household educational level, and other neurologically based comorbid conditions.