Epilepsy Research and Treatment / 2013 / Article / Tab 4

Research Article

Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder

Table 4

Unadjusted rates of unmet needs for CSHCN with parent-reported diagnosis of current epilepsy/seizure disorder as a function of having met or not met the criteria for each of the six quality indicators: National Survey of Children with Special Health Care Needs, 2009-2010.

Unmet needs
Indicator 1: shared decision-making Indicator 2: receipt of care through a medical home Indicator 3: adequate private or public insurance Indicator 4: early and continuous screening and surveillance Indicator 5: services organized for ease of use Indicator 6: effective transition planning
for adult health care
Indicator 1 Criteria metIndicator 1 Criteria not metP Indicator 2 Criteria metIndicator 2 Criteria not metP Indicator 3 Criteria metIndicator 3 Criteria not metP Indicator 4 Criteria metIndicator 4 Criteria not metP Indicator 5 Criteria metIndicator 5 Criteria not metP Indicator 6 Criteria metIndicator 6 Criteria not metP
% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)% (SE)

Routine preventive medical care2.9
(1.03)
3.5
(1.37)
0.711.3
(0.61)
3.3
(0.98)
0.082.8
(0.96)
3.5
(1.45)
0.711.6
(0.79)
8.3
(2.43)
0.010.8
(0.43)
5.4
(1.60)
0.0050.8
(0.77)
5.2
(2.30)
0.08
Specialist care1.2 (0.40)9.9 (2.69)<0.0010.6 (0.47)5.4 (1.30)<0.0012.6
(0.83)
5.6
(1.64)
0.103.8
(0.99)
4.1
(1.40)
0.830.6 (0.40)7.1 (1.64)<0.0018.1
(4.32)
4.5
(1.57)
0.43
Preventive dental care8.4
(1.37)
16.5
(3.71)
0.035.1 (1.86)13.6 (2.00)0.0027.4
(1.32)
16.1
(3.03)
0.016.7 (1.41)26.5 (3.96)<0.0015.3 (1.37)17.0 (2.67)<0.0015.4
(2.31)
14.2
(2.98)
0.03
Other dental care4.2
(1.02)
9.3
(2.98)
0.102.3
(1.35)
7.1
(1.56)
0.023.6
(1.12)
8.8
(3.20)
0.046.0
(1.41)
5.1
(1.61)
0.662.6
(1.01)
8.9
(2.07)
0.0063.2
(2.00)
9.4
(2.53)
0.06
Prescriptions2.7
(0.92)
7.3
(2.51)
0.080.6 (0.42)5.0 (1.30)0.0012.6
(0.86)
6.2
(2.04)
0.114.4
(1.22)
3.1
(1.34)
0.480.8 (0.46)7.4 (1.93)<0.0010.6
(0.65)
6.2
(2.04)
0.02
Physical, occupational, speech therapy8.4 (1.59)25.5 (4.86)<0.0013.8 (1.79)17.7 (2.41)<0.0019.6
(1.84)
19.2
(3.41)
0.0113.2
(2.02)
16.1
(3.41)
0.472.5 (0.95)24.9 (3.45)<0.0014.9
(2.65)
12.8
(3.01)
0.05
Mental health care3.7
(1.31)
11.9
(3.15)
0.010.3 (0.20)8.4 (1.78)<0.0012.3 (1.04)11.9 (2.77)0.0017.0
(1.61)
4.4
(1.48)
0.242.3 (1.16)10.4 (2.33)0.0027.8
(4.14)
9.5
(2.96)
0.73
Substance abuse0.4
(0.28)
0.4
(0.31)
0.940.0
(0.00)
0.6
(0.32)
0.080.0
(0.00)
0.8
(0.48)
0.070.3
(0.24)
0.7
(0.49)
0.530.1
(0.09)
0.7
(0.42)
0.170.5
(0.50)
0.0
(0.00)
0.32
Home health care1.5
(0.50)
6.4
(2.00)
0.010.0 (0.00)4.5 (1.03)<0.0011.8
(0.60)
4.6
(1.42)
0.062.5
(0.76)
4.7
(1.57)
0.210.4 (0.22)5.6 (1.38)<0.0010.1
(0.10)
6.2
(2.00)
0.00
Eyeglasses/vision care1.1
(0.57)
1.7
(0.80)
0.521.6
(1.10)
0.6
(0.27)
0.370.5
(0.22)
1.9
(0.97)
0.151.0
(0.50)
2.2
(1.12)
0.310.9
(0.69)
1.6
(0.62)
0.460.6
(0.45)
2.1
(0.95)
0.14
Hearing aids/hearing care0.1
(0.10)
2.8
(1.69)
0.120.2
(0.22)
1.3
(0.78)
0.190.2
(0.12)
2.0
(1.25)
0.151.2
(0.69)
0.1
(0.1)
0.100.0
(0.00)
1.9
(1.06)
0.080.0
(0.00)
1.6
(1.49)
0.28
Mobility aids/devices4.9
(1.65)
2.5
(0.98)
0.236.1
(2.12)
3.3
(1.47)
0.294.6
(1.82)
3.7
(1.42)
0.692.7
(0.75)
10.8
(5.00)
0.125.1
(2.12)
3.5
(1.14)
0.524.2
(2.99)
6.8
(3.38)
0.56
Communication aids/devices3.0
(0.95)
8.0
(3.23)
0.122.0
(1.40)
5.4
(1.62)
0.112.7
(1.28)
6.7
(1.27)
0.114.8
(1.45)
3.4
(1.15)
0.450.47 (0.19)8.6 (2.36)<0.0010.1
(0.10)
6.4
(2.26)
0.01
Durable medical equipment2.4
(0.68)
1.3
(0.80)
0.310.2
(0.08)
0.6
(0.09)
0.871.7
(0.66)
2.3
(0.87)
0.571.7
(0.54)
3.2
(1.45)
0.320.9
(0.53)
3.1
(0.93)
0.041.5
(0.49)
2.1
(0.83)
0.73

SE: standard error.
Bolded items are statistically significant at the Bonferroni-adjusted level of P < 0.003.

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