Table of Contents
International Journal of Palliative Care
Volume 2014 (2014), Article ID 358457, 8 pages
http://dx.doi.org/10.1155/2014/358457
Research Article

Developing Strategies to Improve Advance Care Planning in Long Term Care Homes: Giving Voice to Residents and Their Family Members

1Centre for Education and Research on Aging and Health, Lakehead University, 955 Oliver Road, Thunder Bay, ON, Canada P7B 5E1
2School of Social Work and Northern Ontario School of Medicine, Lakehead University, 955 Oliver Road, Thunder Bay, ON, Canada P7B 5E1

Received 30 November 2013; Revised 10 March 2014; Accepted 16 March 2014; Published 14 April 2014

Academic Editor: Phillip J. Newton

Copyright © 2014 Kimberly Ramsbottom and Mary Lou Kelley. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. S. Aylward, P. Stolee, N. Keat, and V. Johncox, “Effectiveness of continuing education in long-term care: a literature review,” Gerontologist, vol. 43, no. 2, pp. 259–271, 2003. View at Google Scholar · View at Scopus
  2. J. Österlind, G. Hansebo, J. Andersson, B.-M. Ternestedt, and I. Hellström, “A discourse of silence: professional carers reasoning about death and dying in nursing homes,” Ageing and Society, vol. 31, pp. 529–544, 2011. View at Publisher · View at Google Scholar · View at Scopus
  3. K. Brazil, P. Krueger, M. Bedard et al., “Quality of care for residents dying in Ontario long-term care facilities: findings from a survey of directors of care,” Journal of Palliative Care, vol. 22, no. 1, pp. 18–25, 2006. View at Google Scholar · View at Scopus
  4. S. M. Wowchuk, S. McClement, and J. Bond Jr., “The challenge of providing palliative care in the nursing home—part 1. External factors,” International Journal of Palliative Nursing, vol. 12, no. 6, pp. 260–267, 2006. View at Google Scholar · View at Scopus
  5. J. P. Hirdes, L. Mitchell, C. J. Maxwell, and N. White, “Beyond the “iron lungs of gerontology”: using evidence to shape the future of nursing homes in Canada,” Canadian Journal on Aging, vol. 30, no. 3, pp. 371–390, 2011. View at Publisher · View at Google Scholar · View at Scopus
  6. Statistics Canada: Residential care facilities, 2009-2010, http://www5.statcan.gc.ca/access_acces/alternative_alternatif.action?teng=83-237-x2012001-eng.pdf&tfra=83-237-x2012001-fra.pdf&l=eng&loc=83-237-x2012001-eng.pdf.
  7. S. S. Travis, M. Bernard, S. Dixon, W. J. McAuley, G. Loving, and L. McClanahan, “Obstacles to palliation and end-of-life care in a long-term care facility,” Gerontologist, vol. 42, no. 3, pp. 342–349, 2002. View at Google Scholar · View at Scopus
  8. Canadian Institute for Health Information: Continuing care reporting system (CCRS), Quick Stats Tables 2011-2012, CIHI, Canada, Ottawa, 2012.
  9. F. Stewart, C. Goddard, R. Schiff, and S. Hall, “Advanced care planning in care homes for older people: a qualitative study of the views of care staff and families,” Age and Ageing, vol. 40, no. 3, pp. 330–335, 2011. View at Publisher · View at Google Scholar · View at Scopus
  10. D. P. Oliver, D. Porock, and D. B. Oliver, “Managing the secrets of dying backstage: the voices of nursing home staff,” Omega, vol. 53, no. 3, pp. 193–207, 2006. View at Publisher · View at Google Scholar · View at Scopus
  11. F. Badger, C. Clifford, A. Hewison, and K. Thomas, “An evaluation of the implementation of a programme to improve end-of-life care in nursing homes,” Palliative Medicine, vol. 23, no. 6, pp. 502–511, 2009. View at Publisher · View at Google Scholar · View at Scopus
  12. K. M. Detering, A. D. Hancock, M. C. Reade, and W. Silvester, “The impact of advance care planning on end of life care in elderly patients: randomised controlled trial,” British Medical Journal, vol. 340, Article ID c1345, 2010. View at Publisher · View at Google Scholar · View at Scopus
  13. L. Ceronsky and D. E. Weissman, “Helping families in long-term care facing complex decisions: applying the evidence about family meetings from other settings,” Annals of Long-Term Care, vol. 19, no. 2, pp. 27–32, 2011. View at Google Scholar · View at Scopus
  14. J. G. Ouslander, M. Perloe, J. H. Givens, L. Kluge, T. Rutland, and G. Lamb, “Reducing potentially avoidable hospitalizations of nursing home residents: results of a pilot quality improvement project,” Journal of the American Medical Directors Association, vol. 10, no. 9, pp. 644–652, 2009. View at Publisher · View at Google Scholar · View at Scopus
  15. A. A. Wright, B. Zhang, A. Ray et al., “Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment,” Journal of the American Medical Association, vol. 300, no. 14, pp. 1665–1673, 2008. View at Publisher · View at Google Scholar · View at Scopus
  16. L. Robinson, C. Dickinson, N. Rousseau et al., “A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia,” Age and Ageing, vol. 41, no. 2, pp. 263–269, 2012. View at Publisher · View at Google Scholar · View at Scopus
  17. Speak Up, “Start the conversation about end-of-life care,” 2013, http://www.advancecareplanning.ca.
  18. W. J. McAuley, R. J. Buchanan, S. S. Travis, S. Wang, and M. Kim, “Recent trends in advance directives at nursing home admission and one year after admission,” Gerontologist, vol. 46, no. 3, pp. 377–381, 2006. View at Google Scholar · View at Scopus
  19. J. Blackford, E. Strickland, and B. Morris, “Advance care planning in residential aged care facilities,” Contemporary Nurse, vol. 27, no. 1, pp. 141–151, 2007. View at Google Scholar · View at Scopus
  20. L. H. Mallery and P. Moorhouse, “Respecting frailty,” Journal of Medical Ethics, 2010. View at Google Scholar
  21. Canadian Hospice Palliative Care Association, “Advance care planning,” 2013, http://www.chpca.net/.
  22. S. D. Ramsaroop, M. C. Reid, and R. D. Adelman, “Completing an advance directive in the primary care setting: what do we need for success?” Journal of the American Geriatrics Society, vol. 55, no. 2, pp. 277–283, 2007. View at Publisher · View at Google Scholar · View at Scopus
  23. M. D. Cantor and R. A. Pearlman, “Advance care planning in long-term care facilities,” Journal of the American Medical Directors Association, vol. 4, no. 2, pp. 101–107, 2003. View at Publisher · View at Google Scholar · View at Scopus
  24. P. Triplett, B. S. Black, H. Phillips et al., “Content of advance directives for individuals with advanced dementia,” Journal of Aging and Health, vol. 20, no. 5, pp. 583–596, 2008. View at Publisher · View at Google Scholar · View at Scopus
  25. H. C. Lambert, M. A. McColl, J. Gilbert, J. Wong, G. Murray, and S. E. D. Shortt, “Factors affecting long-term-care residents' decision-making processes as they formulate advance directives,” Gerontologist, vol. 45, no. 5, pp. 626–633, 2005. View at Google Scholar · View at Scopus
  26. J. Watson, J. Hockley, and S. Murray, “Evaluating effectiveness of the GSFCH and LCP in care homes,” End of Life Care, vol. 4, pp. 42–49, 2010. View at Google Scholar
  27. R. S. Hebert, H. G. Prigerson, R. Schulz, and R. M. Arnold, “Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research,” Journal of Palliative Medicine, vol. 9, no. 5, pp. 1164–1171, 2006. View at Publisher · View at Google Scholar · View at Scopus
  28. J. Simon, P. Porterfield, S. Raffin Bouchal, and D. Heyland, “‘Not yet’ and “just ask”: barrieres and facilitators to advance care planning—a qualitative descriptive study of the perspectives of seriously ill, older patienrs and their families,” BMJ Supportive & Palliative Care, 2013. View at Google Scholar
  29. S. Y.-S. Jeong, I. Higgins, and M. McMillan, “The essentials of advance care planning for end-of-life care for older people,” Journal of Clinical Nursing, vol. 19, no. 3-4, pp. 389–397, 2010. View at Publisher · View at Google Scholar · View at Scopus
  30. W. Silvester, R. S. Fullman, and R. A. Parslow, “Quality of advance care planning policy and practice in residential aged care facilities in Australia,” BMJ Support Palliat Care, vol. 3, pp. 349–357, 2012. View at Google Scholar
  31. D. K. Heyland, P. Dodek, G. Rocker et al., “What matters most in end-of-life care: perceptions of seriously ill patients and their family members,” Canadian Medical Association Journal, vol. 174, no. 5, pp. 627–633, 2006. View at Publisher · View at Google Scholar · View at Scopus
  32. D. B. Bekelman, C. T. Nowels, J. H. Retrum et al., “Giving voice to patients' and family caregivers' needs in chronic heart failure: implications for palliative care programs,” Journal of Palliative Medicine, vol. 14, no. 12, pp. 1317–1324, 2011. View at Publisher · View at Google Scholar · View at Scopus
  33. J. L. Phillips, P. M. Davidson, R. Ollerton, D. Jackson, and L. Kristjanson, “A survey of commitment and compassion among nurses in residential aged care,” International Journal of Palliative Nursing, vol. 13, no. 6, pp. 282–290, 2007. View at Google Scholar · View at Scopus
  34. J. Phillips, P. M. Davidson, D. Jackson, L. Kristjanson, J. Daly, and J. Curran, “Residential aged care: the last frontier for palliative care,” Journal of Advanced Nursing, vol. 55, no. 4, pp. 416–424, 2006. View at Publisher · View at Google Scholar · View at Scopus
  35. E. Sherwen, “How to use advance care planning in a care home,” Art & Science, vol. 25, pp. 14–18, 2013. View at Google Scholar
  36. J. J. Rhee, N. A. Zwar, and L. A. Kemp, “How is advance care planning conceptualised in Australia? Findings from key informant interviews,” Australian Health Review, vol. 35, no. 2, pp. 197–203, 2011. View at Publisher · View at Google Scholar · View at Scopus
  37. J. Kwak, E. Ko, and B. J. Kramer, “Facilitating advance care planning with ethnically diverse groups of frail, low-income elders in the USA: perspectives of care managers on challenges and recommendations,” Health & Social Care in the Community, vol. 22, pp. 169–177, 2014. View at Google Scholar
  38. I. A. Scott, G. K. Mitchell, E. J. Reymond, and M. P. Daly, “Difficult but necessary conversations—the case for advance care planning,” Medical Journal of Australia, vol. 199, pp. 662–666, 2013. View at Google Scholar
  39. “Quality Palliative Care in Long Term Care. A Community-University Research Alliance,” 2013, http://www.palliativealliance.ca.
  40. S. Thorne, S. Reimer Kirkham, and K. O'Flynn-Magee, “The analytic Challenge in interpretive description,” International Journal of Qualitative Methods, vol. 3, pp. 1–21, 2004. View at Google Scholar
  41. M. L. Matzo and D. W. Sherman, “Palliative care nursing: ensuring competent care at the end of life,” Geriatric Nursing, vol. 22, no. 6, pp. 288–293, 2001. View at Publisher · View at Google Scholar · View at Scopus