Table of Contents
International Journal of Palliative Care
Volume 2015 (2015), Article ID 357827, 7 pages
http://dx.doi.org/10.1155/2015/357827
Research Article

The Room as Metaphor: Next-of-Kin’s Experiences in End-of-Life Care

1Department of Health and Caring Sciences, Linnaeus University, 351 95 Växjö, Sweden
2Mälardalens University College, 721 23 Västerås, Sweden
3Haraldsplass University College, Bergen, Norway

Received 9 August 2015; Accepted 29 October 2015

Academic Editor: Moira O’Connor

Copyright © 2015 Carina Werkander Harstäde and Åsa Roxberg. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. C. Werkander Harstäde, Guilt and shame in end-of-life care—the next-of-kin's perspective [Doctoral dissertation], Linnaeus University Press, Kållered, Sweden, 2012.
  2. L. Sand and P. Strang, “Existential loneliness in a palliative home care setting,” Journal of Palliative Medicine, vol. 9, no. 6, pp. 1376–1387, 2006. View at Publisher · View at Google Scholar · View at Scopus
  3. A. Bruce, R. Schreiber, O. Petrovskaya, and P. Boston, “Longing for ground in a ground(less) world: a qualitative inquiry of existential suffering,” BioMed Central, vol. 10, no. 2, pp. 1–9, 2011. View at Google Scholar
  4. K. Martinsen, Care and Vulnerability, Akribe, Oslo, Norway, 2006.
  5. M. Andersson, A. K. Ekwall, I. R. Hallberg, and A.-K. Edberg, “The experience of being next of kin to an older person in the last phase of life,” Palliative & Supportive Care, vol. 8, no. 1, pp. 17–26, 2010. View at Publisher · View at Google Scholar · View at Scopus
  6. L. Funk, K. I. Stajduhar, C. Toye, S. Aoun, G. E. Grande, and C. J. Todd, “Part 2: home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998–2008),” Palliative Medicine, vol. 24, no. 6, pp. 594–607, 2010. View at Publisher · View at Google Scholar · View at Scopus
  7. K. I. Stajduhar, L. Funk, C. Toye, G. E. Grande, S. Aoun, and C. J. Todd, “Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998–2008),” Palliative Medicine, vol. 24, no. 6, pp. 573–593, 2010. View at Publisher · View at Google Scholar · View at Scopus
  8. S. M. Aoun, L. J. Kristjanson, P. L. Hudson, D. C. Currow, and J. P. Rosenberg, “The experience of supporting a dying relative: reflections of caregivers,” Progress in Palliative Care, vol. 13, no. 6, pp. 319–325, 2005. View at Publisher · View at Google Scholar · View at Scopus
  9. J. Boucher, C. Bova, S. Sullivan-Bolyai et al., “Next-of-kin's perspectives of end-of-life care,” Journal of Hospice and Palliative Nursing, vol. 12, no. 1, pp. 41–50, 2010. View at Publisher · View at Google Scholar · View at Scopus
  10. M. Linderholm and M. Friedrichsen, “A desire to be seen: family caregivers' experiences of their caring role in palliative home care,” Cancer Nursing, vol. 33, no. 1, pp. 28–36, 2010. View at Publisher · View at Google Scholar · View at Scopus
  11. C. Persson, I skuggan av lungcancer: närståendes erfarenheter [Ph.D. thesis], Karolinska Institutet, Solna, Sweden, 2008.
  12. B. Wallerstedt, Challenges, vulnerability, and support in palliative care outside specialist palliative care settings [Ph.D. thesis], Örebro University Press, Örebro, Sweden, 2012.
  13. R. S. Hebert, R. Schulz, V. C. Copeland, and R. M. Arnold, “Preparing family caregivers for death and bereavement. Insight from caregivers of terminally ill patients,” Journal of Pain and Symptom Management, vol. 37, no. 1, pp. 3–12, 2009. View at Publisher · View at Google Scholar · View at Scopus
  14. P. Benner, “The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices,” in Interpretive Phenomenology—Embodiment, Caring, and Ethics in Health and Illness, P. Benner, Ed., pp. 99–127, SAGE, London, UK, 1994. View at Google Scholar
  15. E. Lassenius, Rummet—i vårdandets värld, Åbo Akademi Förlag, Turku, Finland, 2005.
  16. E. Lassenius, “From room to room—or to be room?” in Concepts in Caring Science in Theory and Practice, L. Wiklund Gustin and I. Bergbom, Eds., pp. 293–306, Studentlitteratur, Lund, Sweden, 2012. View at Google Scholar
  17. Å. Roxberg, Caring and non-caring consolation [Ph.D. thesis], Samhälls-och Vårdvetenskapliga Fakulteten, Åbo Akademi, Åbo, Finland, 2005.
  18. K. Dahlberg and K. Segesten, Hälsa och Vårdande i Teori och Praxis, Natur & Kultur, Stockholm, Sweden, 2010.
  19. C. Werkander Harstäde and B. Andershed, “Good palliative car: how and where? The patients' opinions,” Journal of Hospice & Palliative Nursing, vol. 8, no. 1, pp. 27–35, 2004. View at Google Scholar
  20. E. Lassenius, “One bridge to another—understanding in caring practice,” in Hermeneutics in Caring Practice, E. Lassenius and E. Severinsson, Eds., pp. 81–96, Gleerup, Malmö, Sweden, 2014. View at Google Scholar
  21. C. W. Harstäde, B. Andershed, Å. Roxberg, and D. Brunt, “Feelings of guilt. Experiences of next of kin in end-of-life care,” Journal of Hospice and Palliative Nursing, vol. 15, no. 1, pp. 33–40, 2013. View at Publisher · View at Google Scholar · View at Scopus
  22. C. W. Harstäde, Å. Roxberg, D. Brunt, and B. Andershed, “Next of Kin's experiences of shame in end-of-life care,” Journal of Hospice and Palliative Nursing, vol. 16, no. 2, pp. 86–92, 2014. View at Publisher · View at Google Scholar · View at Scopus
  23. S. Thorne, “Secondary analysis in qualitative research: issues and implications,” in Critical Issues in Qualitative Research Methods, J. Morse, Ed., pp. 263–279, Sage, Thousand Oaks, Calif, USA, 1994. View at Google Scholar
  24. J. Heaton, Reworking Qualitative Data, SAGE Publications, London, UK, 2004.
  25. D. Polit and C. Beck, Nursing Research—Generating and Assessing Evidence for Nursing Practice, Lippincott Williams & Wilkins, Philadelphia, Pa, USA, 2011.
  26. P. Ricoeur, Interpretation Theory: Discourse and the Surplus of Meaning, Christian University Press, Fort Worth, Tex, USA, 1976.
  27. R. Van Wynsberghe and S. Kahm, “Redefining case study,” International Journal of Qualitative Methods, vol. 6, no. 2, pp. 80–94, 2007. View at Google Scholar
  28. S. B. Merriam, Case Study Research in Education: A Qualitative Approach, Jossey Bass, San Francisco, Calif, USA, 1988.
  29. R. Stake, “Qualitative case studies,” in The Sage Handbook of Qualitative Research, N. K. Denzin and Y. S. Lincoln, Eds., pp. 433–466, Sage, Thousand Oaks, Calif, USA, 3rd edition, 2005. View at Google Scholar
  30. S. Anthony and S. Jack, “Qualitative case study methodology in nursing research: an integrative review,” Journal of Advanced Nursing, vol. 65, no. 6, pp. 1171–1181, 2009. View at Publisher · View at Google Scholar · View at Scopus
  31. A.-C. Karlsson, M. Ekebergh, A. Larsson Mauléon, and S. Almerud Österberg, “Only a whisper away. A philosophical view of the awake patient's situation during regional anaesthetics and surgery,” Nursing Philosophy, vol. 13, no. 4, pp. 257–265, 2012. View at Publisher · View at Google Scholar · View at Scopus
  32. I. Carlander, B.-M. Ternestedt, E. Sahlberg-Blom, I. Hellström, and J. Sandberg, “Four aspects of self-image close to death at home,” International Journal of Qualitative Studies on Health and Well-being, vol. 6, no. 2, pp. 5931–5944, 2011. View at Publisher · View at Google Scholar · View at Scopus
  33. A. Lyberg, A. L. Holm, E. Lassenius, I. Berggren, and E. Severinsson, “Older persons' experiences of depressive ill-health and family support,” Nursing Research and Practice, vol. 2013, Article ID 837529, 8 pages, 2013. View at Publisher · View at Google Scholar · View at Scopus
  34. J. M. Georges, “Suffering: toward a contextual praxis,” Advances in Nursing Science, vol. 25, no. 1, pp. 79–86, 2002. View at Publisher · View at Google Scholar · View at Scopus
  35. Eriksson, The Suffering Human Being, Liber Utbildning, Arlöv, Sweden, 1994.