Table of Contents
ISRN Rheumatology
Volume 2011 (2011), Article ID 463124, 5 pages
http://dx.doi.org/10.5402/2011/463124
Clinical Study

Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis

1Department of Physical Therapy, Karolinska University Hospital, 171 76 Stockholm, Sweden
2Rheumatology Unit, Department of Medicine, Karolinska University Hospital Solna, Karolinska Institute, 171 76 Stockholm, Sweden
3Unit for Clinical Therapy Research, Inflammatory Diseases, Karolinska Institute, 17176 Stockholm, Sweden

Received 12 January 2011; Accepted 2 March 2011

Academic Editors: A. M. Huber and E. Tchetina

Copyright © 2011 Li Alemo Munters et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Objectives. Polymyositis (PM) and dermatomyositis (DM) are characterized by impaired muscle function with a majority of patients developing sustained disability. The aim of this study was to evaluate the patient’s individual priorities (patient preference) of disabilities most important to improve in PM/DM using the MacMaster Toronto Arthritis Patient Preference Disability Questionnaire (MACTAR), to correlate the MACTAR to myositis outcomes and to evaluate its test-retest reliability. Methods. Twenty-eight patients with PM/DM performed recommended outcomes as well as the MACTAR, which was performed twice with one week apart. Results. Sexual activity, walking, biking, social activities, and sleep constituted the predominating disabilities. Seventy-two and 33% of the identified disabilities were not covered by items of the Health Assessment Questionnaire and the Myositis Activities Profile. Correlations between the MACTAR and health-related quality of life measures were π‘Ÿ 𝑠 = −0.67–0.73, correlations with measures of activities of daily living and participation in society were π‘Ÿ 𝑠 = 0.51–0.60 with lower correlations for other outcomes. Intraclass correlation (ICC) and weighted Kappa ( 𝐾 𝑀 ) coefficients were 0.83 and 0.68, respectively, for test-retest reliability of the MACTAR. Conclusions. The MACTAR interview had promising measurement properties and identified patient preference disabilities in PM/DM that were not covered by recommended outcomes.