|
| Predetermined codes | Inductively derived codes | Category | Theme |
|
| Social participation and involvement (ASCOT) | Participation | Long term effects of caring; concern for the future | Social network and relationships |
| Enjoyment and pleasure (ICECAP-O) | Positive coping |
| Love and friendship (ICECAP-O) | Being positive |
| Anxiety/depression (EQ-5D) | Blame |
| Support from family and friends (CES) | Safety |
| Activities outside caring (CES) | Embarrassment |
| Getting on with the person you care for (CES) | Isolation |
| Fulfilment from caring (CES) | |
|
| Assistance from organisations and the government (CES) | Dealing with professionals | Feelings about involvement with decisions; beliefs about health and social care agencies | Interactions with agencies |
| Recording experiences |
| Need for information |
|
| Control over caring (CES) | Raising awareness | Helping others | Recognition of role |
| Doing things that make you feel valued (ICECAP-O) | Respect |
| Occupation (ASCOT) | Person with dementia awareness |
|
| Self-care (EQ-5D) | Own health | Direct impact of caring | Time for yourself |
| Usual activities (EQ-5D) | Feeling overwhelmed |
| Independence (ICECAP-O) | Frustration |
| Thinking about the future (ICECAP-O) | Guilt |
| Control over daily life (CES) | Dignity |
| Accommodation, cleanliness, and comfort (CES) | Difficulty articulating |
| Personal cleanliness and comfort (CES) | |
|
