Results of a Qualitative Study to Develop a Patient Reported Outcome Measure for Patients with 4 Subtypes of Soft Tissue Sarcoma

Table 2

Self-reported STS participant demographic characteristics.

Participant demographic characteristics	Total study sample; (completing web survey); ()	Interview sample; ()
Mean age (SD, range)	54 (8, 32–67)	55 (10, 32–67)
Female (%)	26 (96%)	10 (100%)
Race, (%)
White	25 (93%)	9 (90%)
Other	2 (8%)	1 (10%)
Highest level of education, (%)
Secondary/high school/some college	9 (41%)	5 (60%)
College degree/postgraduate	18 (59%)	5 (40%)
Employment status, (%)
Employed, full-time	7 (26%)	1 (10%)
Not working	8 (30%)	6 (60%)
Disabled	12 (44%)	3 (30%)
Current health status, (%)
Excellent/very good/good	19 (70%)	8 (80%)
Fair/poor	8 (30%)	2 (20%)
STS subtype
Leiomyosarcoma	20 (74%)	4 (40%)
Liposarcoma	1 (4%)	1 (10%)
Synovial sarcoma	2 (8%)	2 (20%)
Undifferentiated sarcoma	4 (15%)	3 (30%)
Tumor location (primary and/or secondary)
Abdomen	9 (33%)	3 (30%)
Chest	5 (18%)	3 (30%)
Pelvic region	10 (37%)	2 (20%)
Extremities	2 (7%)	2 (20%)
Other	3 (11%)	2 (20%)
Resected primary tumor
Yes	24 (89%)	9 (90%)
Metastasized tumor
Yes	15 (56%)	10 (100%)

More than one location of tumors possible.
Others including retroperitoneal/pubic bone (); and , each of the following tumor locations: interior vena cava; lower back; pelvis/peritoneal tissue; uterus; uterus/abdomen; uterus/abdomen/spine; uterus/fatty layer of colon; uterus/scalp/thyroid/skull base/pancreas; vagina; and vagina/vertebrae.
Leg, lung, and spine ().
Leg/foot (); abdomen, mediastinum ().
Abdomen (); chest, underarms (), tongue, and lymph node (); uterus ().
Leg, lung, and spine (); lymph node (); mediastinum ().