Research Article

Results of a Qualitative Study to Develop a Patient Reported Outcome Measure for Patients with 4 Subtypes of Soft Tissue Sarcoma

Table 3

Web survey results for symptom frequency and severity.

SymptomStudy participants reporting symptom
(%)
How important is it that this symptom improve for you?In the past 7 days, how often did you feel X?During the past 24 hours, how severe was X at its worst?

Abdominal painAverage (SD, median)2.3 (0.9, 2.5)2.2 (1.2, 2)1.6 (0.9, 1)
Pressure in abdomenAverage (SD, median)2.3 (0.7, 2)2.0 (1.3, 1)1.8 (1.2, 1)
Feel full after eating only a small amount of foodAverage (SD, median)1.9 (0.7, 2)2.6 (1.5, 2)2.3 (1.5, 2)
BloatingAverage (SD, median)2.5 (0.5, 2.5)3.2 (1.5, 3.5)3.0 (2.0, 3)
Gastrointestinal painAverage (SD, median)2.8 (0.4, 3)3.3 (1.5, 4)3.0 (1.7, 3.5)
Muscle painAverage (SD, median)2.5 (0.6, 2.5)3.2 (1.3, 3)2.7 (1.0, 2.5)
(Females only) heavy menstrual flowAverage (SD, median)1.7 (1.5, 2)2.0 (1.7, 1)2.0 (1.7, 1)
Bone painAverage (SD, median)2.3 (0.6, 2)2.3 (0.6, 2)2.3 (0.6, 2)
(Females only) painful menstruationAverage (SD, median)2.5 (0.7, 2.5)2.5 (2.1, 2.5)2.0 (1.4, 2)
Shortness of breathAverage (SD, median)1.5 (0.7, 1.5)1.5 (0.7, 1.5)1.0 (0, 1)
Chest painAverage (SD, median)3.0 (0, 3)1.0 (0, 1)1.0 (0, 1)
CoughAverage (SD, median)1.5 (0.7, 1.5)1.5 (0.7, 1.5)1.5 (0.7, 1.5)

0: not important, 1: somewhat important, 2: important, and 3: extremely important.
1: never, 2: rarely, 3: occasionally, 4: frequently, and 5: almost constantly.
1: none, 2: mild, 3: moderate, 4: severe, and 5: very severe.