Sarcoma / 2020 / Article / Tab 1

Research Article

Assessing the Desmoid-Type Fibromatosis Patients’ Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries

Table 1

Clinical characteristics of 29 participating patients.

Total group (%)aDutch patients (n = 17)British patients (n = 12)

SexMale10(35%)5(29%)5(42%)
Female19(65%)12(71%)7(59%)
Median age in years at the time of questionnaires (IQR)b43(36–55)44(36–55)41(32–56)
Median age in years at the time of diagnosis (IQR)c38(30–48)38(30–48)37(28–50)
Tumour localisationAbdominal wall2(7%)2(12%)0(0%)
Intra-abdominal10(35%)8(47%)2(17%)
Extremity/girdles/chest wall15(52%)6(35%)9(75%)
Head/neck/intrathoracic1(3%)1(6%)0(0%)
Missing value1(3%)0(0%)1(6%)
Recurrent diseaseYes6(21%)2(12%)4(33%)
No21(72%)15(88%6(50%)
Missing value2(7%)0(0%)2(17%)
Received treatments (some patients gave multiple answers)Wait and see21129
Surgery1486
Radiotherapy413
Chemotherapy514
Nonsteroidal anti-inflammatory drugs817
Hormonal treatment725
Pain management909
Physiotherapy734
Occupational therapy211
Currently receiving any active form of treatmentYes9(31%)0(0%)9(75%)
No19(66%)17(100%)2(17%)
Missing value1(3%)0(0%)1(8%)
Comorbidity (some patients gave multiple answers)No1165
Arthritis or long-term joint problem321
Asthma or long-term chest problem422
Diabetes110
High blood pressure101
Kidney or liver disease110
Long-term back problem633
Long-term mental health problem220
Long-term neurological problem110
Physical disability211
Othersd321
Missing value220

aPercentages may not add up to 100% due to rounding up of decimals. bAnswered by n = 21 participating patients. cAnswered by n = 29 participating patients. dIncluding digestive problems, coeliac disease lactose intolerance, and iron deficiency.