Sarcoma / 2020 / Article / Tab 3

Research Article

Assessing the Desmoid-Type Fibromatosis Patients’ Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries

Table 3

Results of the EORTC QLQ-C30 questionnaire (version 3.0) of patients and the general population.

Total mean (SD) patientsBritish participating patients, n = 12 mean (SD)Dutch participating patients, n = 17 mean (SD) valueDutch general population, n = 170 mean (SD)British general population, n = 80a mean (SD)

Dyspnoea10.3(23.7)8.0(15.1)11.8(28.7)0.8458.2(19.1)18.7(11.8)
Insomnia31(38.8)55.6(38.4)13.7(29.0)0.00420.8(25.1)37.9(39.6)
Appetite loss14.9(26.1)22.2(21.7)9.8(28.3)0.0732.9(11.9)16.2(24.8)
Constipationa16.7(32.1)21.2(37.3)13.7(29.0)0.7814.7(13.7)14.6(30.9)
Diarrhoea17.2(30.4)27.8(39.8)9.8(19.6)0.3257.3(17.9)14.2(45.2)
Financial difficulties11.5(24.0)22.2(29.6)3.9(16.2)0.0595.7(18.9)23.3(34.5)
Nausea/vomiting7.5(17.6)13.9(24.4)2.9(8.8)0.1804.7(13.7)14.6(28.8)
Pain33.9(36.0)58.3(37.3)16.7(23.6)0.00416.2(21.9)29.4(40.3)
Fatigue31(32.9)49.1(29.0)18.3(29.9)0.00422.5(22.4)33.9(32.2)
Cognitive functioning79.9(30.3)65.3(32.1)90.2(25.0)0.03091.7(15.7)76.7(29.5)
Emotional functioning73.6(32.4)59.0(33.6)83.8(28.2)0.02184.3(18.9)67.3(36.7)
Social functioning77.6(29.6)58.3(33)91.2(17.8)0.00194.2(14.9)75.4(38.8)
Physical functioning75.2(27.9)67.8(32.5)80.3(23.9)0.39492.5(13.1)80.2(33.3)
Role functioning71.8(32.8)52.8(40.1)85.3(17.6)0.02791.8(19.5)76.5(38.8)
Global health status68.7(27.7)56.9(29.5)77.0(23.9)0.04378.7(18.2)60.2(34.6)
Summary score78.163.587.289.876.7

aData missing from 1 British patient; statistically significant difference. Mean scores with standard deviation (SD) are displayed for all scales of the EORTC QLQ-C30. The value represents the comparison of the scores of the British participating patients versus the scores of the Dutch participating patients. Two-sided was considered statistically significant.