Assessing the Desmoid-Type Fibromatosis Patients’ Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries
Table 3
Results of the EORTC QLQ-C30 questionnaire (version 3.0) of patients and the general population.
Total mean (SD) patients
British participating patients, n = 12 mean (SD)
Dutch participating patients, n = 17 mean (SD)
value
Dutch general population, n = 170 mean (SD)
British general population, n = 80a mean (SD)
Dyspnoea
10.3
(23.7)
8.0
(15.1)
11.8
(28.7)
0.845
8.2
(19.1)
18.7
(11.8)
Insomnia
31
(38.8)
55.6
(38.4)
13.7
(29.0)
0.004
20.8
(25.1)
37.9
(39.6)
Appetite loss
14.9
(26.1)
22.2
(21.7)
9.8
(28.3)
0.073
2.9
(11.9)
16.2
(24.8)
Constipationa
16.7
(32.1)
21.2
(37.3)
13.7
(29.0)
0.781
4.7
(13.7)
14.6
(30.9)
Diarrhoea
17.2
(30.4)
27.8
(39.8)
9.8
(19.6)
0.325
7.3
(17.9)
14.2
(45.2)
Financial difficulties
11.5
(24.0)
22.2
(29.6)
3.9
(16.2)
0.059
5.7
(18.9)
23.3
(34.5)
Nausea/vomiting
7.5
(17.6)
13.9
(24.4)
2.9
(8.8)
0.180
4.7
(13.7)
14.6
(28.8)
Pain
33.9
(36.0)
58.3
(37.3)
16.7
(23.6)
0.004
16.2
(21.9)
29.4
(40.3)
Fatigue
31
(32.9)
49.1
(29.0)
18.3
(29.9)
0.004
22.5
(22.4)
33.9
(32.2)
Cognitive functioning
79.9
(30.3)
65.3
(32.1)
90.2
(25.0)
0.030
91.7
(15.7)
76.7
(29.5)
Emotional functioning
73.6
(32.4)
59.0
(33.6)
83.8
(28.2)
0.021
84.3
(18.9)
67.3
(36.7)
Social functioning
77.6
(29.6)
58.3
(33)
91.2
(17.8)
0.001
94.2
(14.9)
75.4
(38.8)
Physical functioning
75.2
(27.9)
67.8
(32.5)
80.3
(23.9)
0.394
92.5
(13.1)
80.2
(33.3)
Role functioning
71.8
(32.8)
52.8
(40.1)
85.3
(17.6)
0.027
91.8
(19.5)
76.5
(38.8)
Global health status
68.7
(27.7)
56.9
(29.5)
77.0
(23.9)
0.043
78.7
(18.2)
60.2
(34.6)
Summary score
78.1
63.5
87.2
89.8
76.7
aData missing from 1 British patient; statistically significant difference. Mean scores with standard deviation (SD) are displayed for all scales of the EORTC QLQ-C30. The value represents the comparison of the scores of the British participating patients versus the scores of the Dutch participating patients. Two-sided was considered statistically significant.
