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Schizophrenia Research and Treatment
Volume 2016 (2016), Article ID 1958198, 12 pages
http://dx.doi.org/10.1155/2016/1958198
Research Article

Parents’ Experiences of Caring Responsibility for Their Adult Child with Schizophrenia

1Karolinska Institute, Division of Nursing, Department of Neurobiology, Care Science and Society, 171 77 Stockholm, Sweden
2Department of Sociology, Uppsala University, Box 624, 751 26 Uppsala, Sweden
3Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institute, 171 77 Stockholm, Sweden
4Sophiahemmet University, Box 5605, 114 86 Stockholm, Sweden

Received 21 September 2015; Accepted 10 January 2016

Academic Editor: Markus Jäger

Copyright © 2016 Ann Blomgren Mannerheim et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

As a consequence of the latest psychiatry-related reform in Sweden and its implementation, relatives and family members have taken over from the formal healthcare system significant responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically describe and analyze the experiences of parents’ informal care responsibility. The questions were, what are the experiences around parents’ informal care activities and responsibilities and how do parents construct and manage their caring responsibility and with what consequences? Semistructured in-depth interviews were conducted (16 hours of recorded material) with eight parents who were all members of the Interest Association for Schizophrenia (Intresseföreningen för Schizofreni (IFS)) in Sweden. A mixed hermeneutic deductive and inductive method was used for the interpretation of the material. The parents endow their informal caring responsibility with meaning of being a good, responsible, and accountable parent with respect to their social context and social relationships as well as with respect to the psychiatric care representatives. In this tense situation, parents compromise between elements of struggle, cooperation, avoidance, and adaption in their interaction with the world outside, meaning the world beyond the care provision for their child, as well as with the world inside themselves.