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Schizophrenia Research and Treatment
Volume 2016 (2016), Article ID 1958198, 12 pages
http://dx.doi.org/10.1155/2016/1958198
Research Article

Parents’ Experiences of Caring Responsibility for Their Adult Child with Schizophrenia

1Karolinska Institute, Division of Nursing, Department of Neurobiology, Care Science and Society, 171 77 Stockholm, Sweden
2Department of Sociology, Uppsala University, Box 624, 751 26 Uppsala, Sweden
3Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institute, 171 77 Stockholm, Sweden
4Sophiahemmet University, Box 5605, 114 86 Stockholm, Sweden

Received 21 September 2015; Accepted 10 January 2016

Academic Editor: Markus Jäger

Copyright © 2016 Ann Blomgren Mannerheim et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. S. Bremberg and C. Dalman, Concepts, Methods and Prevalence of Mental Health, Mental Illness and Psychiatric Disorders in Children and Adolescents. A Review, Swedish Research Council, Stockholm, Sweden, 2015.
  2. R. Lindqvist, S. Bengtsson, L. Fredén et al., “From reform intention to practice. How reforms in psychiatry and social care are transformed into concrete support in the Nordic countries,” NHVs Rapportserie 2011:4R, Nordic School of Public Health NHV, The Nordic Council of Ministers, Göteborg, Sweden, 2011. View at Google Scholar
  3. R. Lindqvist, D. Rosenberg, and L. Fredén, “Den svenska psykiatrireformen i nordisk belysning,” Socialvetenskaplig Tidskrift, vol. 88, no. 6, 2011. View at Google Scholar
  4. The National Board of Health and Welfare (Socialstyrelsen), Välfärd och Valfrihet? Slutrapport från Utvärderingen av 1995 års Psykiatrireform, The National Board of Health and Welfare (Socialstyrelsen), Stockholm, Sweden, 1999.
  5. Government Bill [Regeringens Proposition], Ekonomisk Reglering Mellan Landsting och Kommuner med Anledning av Ökat Kommunalt Ansvar för Psykiskt Störda, 96:72, Socialdepartementet, Stockholm, Sweden, 1995.
  6. L. Kjellin, O. Östman, Å. Rangford, and C.-G. Westrin, “Psykiskt långtidssjuka personers livssituation. En studie i Västmanland: bakgrund, syfte, metod och material,” Socialmedicinsk Tidskrift, vol. 74, pp. 148–152, 1997. View at Google Scholar
  7. The World Health Report, Mental Health: New Understanding, New Hope, WHO Library Cataloguing-in-Publication Data, Geneva, Switzerland, 2001.
  8. A. Topor, Managing the contradictions—recovery from severe mental disorders [Dr. Diss.], Department of Social Work, Stockholm University, Stockholm, Sweden, 2001.
  9. K. Persson, B. Axtelius, B. Söderfeldt, and M. Östman, “Association of perceived quality of life and oral health among psychiatric outpatients,” Psychiatric Services, vol. 60, no. 11, pp. 1552–1554, 2009. View at Publisher · View at Google Scholar · View at Scopus
  10. J. A. Zauszniewski, A. K. Bekhet, and M. J. Suresky, “Relationships among perceived burden, depressive cognitions, resourcefulness, and quality of life in female relatives of seriously mentally ill adults,” Issues in Mental Health Nursing, vol. 30, no. 3, pp. 142–150, 2009. View at Publisher · View at Google Scholar · View at Scopus
  11. H. Arvidsson, “Severely and persistently mentally ill—a changing group. Ten years after the 1995 Swedish mental health care reform,” Nordic Journal of Psychiatry, vol. 63, no. 5, pp. 355–360, 2009. View at Publisher · View at Google Scholar · View at Scopus
  12. L. Johansson, “Caring for the next of kin. On informal care of elderly in Sweden,” Doctoral Thesis from the Faculty of Medicine 330, Department of Social Medicine, University Hospital, Uppsala University, Reprocentralen, HSCm Uppsala, Uppsala, Sweden, 1991. View at Google Scholar
  13. H. P. Lefley, Family Caregiving in Mental Illness, Sage, Thousand Oaks, Calif, USA, 1996.
  14. A. Plank, V. Mazzoni, and L. Cavada, “Becoming a caregiver: new family carers' experience during the transition from hospital to home,” Journal of Clinical Nursing, vol. 21, no. 13-14, pp. 2072–2082, 2012. View at Publisher · View at Google Scholar · View at Scopus
  15. N. J. K. Breitborde and V. H. Srihari, “Family work for first-episode psychosis: a service delivery protocol,” in Psychiatry—Theory, Applications and Treatments. Psychosis, Causes, Diagnosis and Treatment, X. Anastassiou-Hadjicharalambous, Ed., Nova Science Publishers, New York, NY, USA, 2012. View at Google Scholar
  16. R. P. Cangelosi, “Caregiver burden or caregiver gain? Respite for family caregivers,” Journal of Psychosocial Nursing and Mental Health Services, vol. 47, no. 9, pp. 19–22, 2009. View at Publisher · View at Google Scholar
  17. F. Hjärthag, L. Helldin, U. Karilampi, and T. Norlander, “Illness-related components for the family burden of relatives to patients with psychotic illness,” Social Psychiatry and Psychiatric Epidemiology, vol. 45, no. 2, pp. 275–283, 2010. View at Publisher · View at Google Scholar · View at Scopus
  18. H. L. Provencher and K.-T. Mueser, “Positive and negative symptom behaviors and caregiver burden in the relatives of persons with schizophrenia,” Schizophrenia Research, vol. 26, no. 1, pp. 71–80, 1997. View at Publisher · View at Google Scholar · View at Scopus
  19. A. N. Karanci, “Caregivers of Turkish schizophrenic patients; causal attributions, burdens and attitudes to help from the health professionals,” Social Psychiatry and Psychiatric Epidemiology, vol. 30, no. 6, pp. 261–268, 1995. View at Publisher · View at Google Scholar · View at Scopus
  20. H. Arvidsson, “Needs assessed by patients and staff in a Swedish sample of severely mentally ill subjects,” Nordic Journal of Psychiatry, vol. 55, no. 5, pp. 311–317, 2001. View at Publisher · View at Google Scholar · View at Scopus
  21. H. Arvidsson, “Met and unmet needs of severely mentally ill persons—the psychiatric care reform in Sweden,” Social Psychiatry and Psychiatric Epidemiology, vol. 38, no. 7, pp. 373–379, 2003. View at Google Scholar · View at Scopus
  22. M. Carpenter, “‘It's a small world’: mental health policy under welfare capitalism since 1945,” Sociology of Health & Illness, vol. 22, no. 5, pp. 602–620, 2000. View at Publisher · View at Google Scholar · View at Scopus
  23. U. Markström, Den svenska psykiatrireformen: bland brukare, eldsjälar och byråkrater [Dr. Diss.], Umeå University, Umeå, Sweden, 2003.
  24. C.-G. Stefansson and L. Hansson, “Mental health care reform in Sweden, 1995,” Acta Psychiatrica Scandinavica, vol. 104, supplement 410, pp. 82–88, 2002. View at Google Scholar
  25. The National Board of Health and Welfare & County Administrative Board (Socialstyrelsen & Länsstyrelserna), Kommunernas Insatser för Personer med Psykiska Funktionshinder. Slutrapport Från en Nationell Tillsyn 2002–2004, The National Board of Health and Welfare (Socialstyrelsen), Stockholm, Sweden, 2003.
  26. M. Östman, L. Hansson, and K. Andersson, “Family burden, participation in care and mental health—an 11-year comparison of the situation of relatives to compulsorily and voluntarily admitted patients,” International Journal of Social Psychiatry, vol. 46, no. 3, pp. 191–200, 2000. View at Publisher · View at Google Scholar · View at Scopus
  27. M. Östman and L. Hansson, “The burden of relatives of psychiatric patients. Comparisons between parents, spouses, and grown-up children of voluntarily and compulsorily admitted psychiatric patients,” Nordic Journal of Psychiatry, vol. 54, no. 1, pp. 31–36, 2000. View at Publisher · View at Google Scholar · View at Scopus
  28. A. Leinonen, “Informal family carers and lack of personal time: descriptions of being outside the sphere of formal help,” Nordic Social Work Research, vol. 1, no. 2, pp. 91–108, 2011. View at Publisher · View at Google Scholar
  29. K. Waerness, “The rationality of caring,” Economic and Industrial Democracy, vol. 5, no. 2, pp. 185–211, 1984. View at Publisher · View at Google Scholar
  30. M. Mayeroff, On Caring, William Morrow & Company, New York, NY, USA, 1999.
  31. P. L. Berger and T. Luckman, The Social Construction of Reality. A Treatise in the Sociology of Knowledge, Penguin Books, London, UK, 1966.
  32. D. Føllesdal, L. Wallöe, and J. Elster, Argumentationsteori. Språk och Vetenskapsfilosofi, Thales, Oslo, Norway, 1993.
  33. E. Goffman, Asylums: Essays on the Social Situation of Mental Patients and Other Inmates, Doubleday, Garden City, NY, USA, 1961.
  34. The Association for Schizophrenia, Schizofreniförbundet. Intresseförbundet för personer med schizofreni och liknande psykoser, 2015, http://www.schizofreniforbundet.se/.
  35. WMA, “World Medical association declaration of Helsinki, Ethical Principles for Medical Research Involving Human Subjects,” 59th WMA General Assembly, Seoul, South Korea, 2008, http://www.wma.net/en/30publications/10policies/b3/17c.pdf.
  36. Reg. prop. (2002/03:50) [The government propel]. Etikprövning I forskning [The ethical probation]. Stockholm: Utbildningsdepartementet [The Department of Education].
  37. SFS, Governmental Act (2003:460) on Ethical Review of Research Involving Humans, Utbildningsdepartementet, Stockholm, Sweden, 2003.
  38. R. Buttny, Social Accountability in Communication, Sage Publications, London, UK, 1993.
  39. A. Schütz, The Phenomenology of Social World, Daidalos, Göteborg, Sweden, 1953/2002.
  40. S. Stryker, T. J. Owens, and R. W. White, Eds., Self, Identity, and Social Movements, University of Minnesota Press, Minneapolis, Minn, USA, 2000.
  41. V. Gecas, “Personal identity,” in Self, Identity, and Social Movements, S. Stryker, T. J. Owens, and R. W. White, Eds., University of Minnesota Press, Minneapolis, Minn, USA, 2000. View at Google Scholar
  42. U. Hellström Muhli, “Accounts of pain experience in a Swedish elderly care context,” Communication & Medicine, vol. 7, no. 1, pp. 55–64, 2010. View at Google Scholar
  43. A. Pejlert, “Leading a life with meaning and dignity in spite of suffering from long-term schizophrenia. Contributions of care,” Medical Dissertations 653, Umeå University, Umeå, Sweden, 2000. View at Google Scholar
  44. B. Schulze and M. C. Angermeyer, “Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals,” Social Science and Medicine, vol. 56, no. 2, pp. 299–312, 2003. View at Publisher · View at Google Scholar · View at Scopus
  45. T. Orhagen, Working with Families in Schizophrenic Disorders: The Practice of Psycho Educational Intervention, vol. 363 of Medical Dissertations, Linköping University, Linköping, Sweden, 1992.
  46. L. Stein and A. Santos, Psykiatriskt Arbete, Studentlitteratur, Lund, Sweden, 2004.
  47. P.-J. Ödman, Interpretation, Understanding, Knowing—Hermeneutics in Theory and Practice, AWE/GEBERS, Borås, Sweden, 1994.
  48. E. Siouta, A. Broström, and B. Hedberg, “Content and distribution of discursive space in consultations between patients with atrial fibrillation and healthcare professionals,” European Journal of Cardiovascular Nursing, vol. 12, no. 1, pp. 47–55, 2013. View at Publisher · View at Google Scholar · View at Scopus
  49. A.-M. Baronet, “Factors associated with caregiver burden in mental illness: a critical review of the research literature,” Clinical Psychology Review, vol. 19, no. 7, pp. 819–841, 1999. View at Publisher · View at Google Scholar · View at Scopus
  50. A. Anell, A. H. Glenngård, and S. Merkur, “Sweden health system review,” Health Systems in Transition, vol. 14, no. 5, pp. 1–159, 2012. View at Google Scholar · View at Scopus
  51. L.-M. Sjöblom, A. Pejlert, and K. Asplund, “Nurses' view of the family in psychiatric care,” Journal of Clinical Nursing, vol. 14, no. 5, pp. 562–569, 2005. View at Publisher · View at Google Scholar · View at Scopus
  52. Swedish Society of Nursing (Svensk Sjuksköterskeförening), Närståendes Behov. Omvårdnad som Akademiskt Ämne, Bromma Tryck, Stockholm, Sweden, 2004.
  53. I. Hellberg, V. Augustsson, and U. Hellström Muhli, “Elderly people's experiences of living in special housing accommodation,” International Journal of Qualitative Studies on Health and Well-Being, vol. 6, no. 1, article 5894, 2011. View at Google Scholar
  54. E. Siouta, U. Hellström Muhli, B. Hedberg, A. Broström, B. Fossum, and K. Karlgren, “Patients' experiences of communication and involvement in decision-making about atrial fibrillation treatment in consultations with nurses and physicians,” Scandinavian Journal of Caring Sciences, 2015. View at Publisher · View at Google Scholar