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AIDS Research and Treatment
Volume 2016, Article ID 8340863, 12 pages
http://dx.doi.org/10.1155/2016/8340863
Research Article

Use of Cognitive Interviews to Adapt PROMIS Measurement Items for Spanish Speakers Living with HIV

1Department of Health Services, School of Public Health, University of Washington, Seattle, WA, USA
2Department of Global Health, University of Washington, Seattle, WA, USA
3Owen Clinic, University of California San Diego Medical Center, San Diego, CA, USA
4Group Health Research Institute, Seattle, WA, USA

Received 1 December 2015; Accepted 28 January 2016

Academic Editor: Otoniel Martinez-Maza

Copyright © 2016 R. Solorio et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. Pew Research Center, A statistical portrait of U.S. Hispanics, 2013, http://www.pewhispanic.org/2013/02/15/hispanic-population-trends/ph_13-01-23_ss_hispanics1/.
  2. Pew Research Center, “A Demographic Portrait of Mexican-Origin Hispanics in the United States,” 2013, http://www.pewhispanic.org/2013/05/01/a-demographic-portrait-of-mexican-origin-hispanics-in-the-united-states/.
  3. C. Acquadro, K. Conway, A. Hareendran, and N. Aaronson, “Literature review of methods to translate health-related quality of life questionnaires for use in multinational clinical trials,” Value in Health, vol. 11, no. 3, pp. 509–521, 2008. View at Publisher · View at Google Scholar · View at Scopus
  4. G. Martinez, B. V. Marín, and A. Schoua-Glusberg, “Translating from English to Spanish: the 2002 National Survey of Family Growth,” Hispanic Journal of Behavioral Sciences, vol. 28, no. 4, pp. 531–545, 2006. View at Publisher · View at Google Scholar · View at Scopus
  5. S. L. Eremenco, D. Cella, and B. J. Arnold, “A comprehensive method for the translation and cross-cultural validation of health status questionnaires,” Evaluation & the Health Professions, vol. 28, no. 2, pp. 212–232, 2005. View at Publisher · View at Google Scholar · View at Scopus
  6. D. Wild, A. Grove, M. Martin et al., “Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR Task Force for Translation and Cultural Adaptation,” Value in Health, vol. 8, no. 2, pp. 94–104, 2005. View at Publisher · View at Google Scholar · View at Scopus
  7. J. B. Jobe and D. J. Mingay, “Cognitive research improves questionnaires,” American Journal of Public Health, vol. 79, no. 8, pp. 1053–1055, 1989. View at Publisher · View at Google Scholar · View at Scopus
  8. K. Alaimo, C. M. Olson, and E. A. Frongillo, “Importance of cognitive testing for survey items: an example from food security questionnaires,” Journal of Nutrition Education, vol. 31, no. 5, pp. 269–275, 1999. View at Publisher · View at Google Scholar · View at Scopus
  9. G. B. Willis, Cognitive Interviewing and Questionnaire Design: A Training Manual, vol. 7 of Working Paper Series, Office of Research and Methodology, National Center for Health Statistics, Hyattsville, Md, USA, 1994.
  10. S. Sudman, N. M. Bradburn, and N. Schwartz, Eds., Thinking about Answers: The Application of Cognitive Processes to Survey Methodology, Jossey-Bass, San Francisco, Calif, USA, 1996.
  11. D. E. Irwin, J. W. Varni, K. Yeatts, and D. A. DeWalt, “Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study,” Health and Quality of Life Outcomes, vol. 7, no. 3, pp. 1–10, 2009. View at Publisher · View at Google Scholar · View at Scopus
  12. G. B. Willis, Cognitive Interviewing: A Tool for Improving Questionnaire Design, Sage Publications, 2005.
  13. A. A. García, “Cognitive interviews to test and refine questionnaires,” Public Health Nursing, vol. 28, no. 5, pp. 444–450, 2011. View at Publisher · View at Google Scholar · View at Scopus
  14. E. T. Carbone, M. K. Campbell, and L. Honess-Morreale, “Use of cognitive interview techniques in the development of nutrition surveys and interactive nutrition messages for low-income populations,” Journal of the American Dietetic Association, vol. 102, no. 5, pp. 690–696, 2002. View at Publisher · View at Google Scholar · View at Scopus
  15. T. C. Edwards, R. J. Fredericksen, H. M. Crane et al., “Content validity of patient-reported outcomes measurement information system (PROMIS) items in the context of HIV clinical care,” Quality of Life Research, vol. 25, no. 2, pp. 293–302, 2016. View at Publisher · View at Google Scholar
  16. K. Kroenke, R. L. Spitzer, and J. B. W. Williams, “The PHQ-9: validity of a brief depression severity measure,” Journal of General Internal Medicine, vol. 16, no. 9, pp. 606–613, 2001. View at Publisher · View at Google Scholar · View at Scopus
  17. S. T. Lawrence, J. H. Willig, H. M. Crane et al., “Routine, self-administered, touch-screen, computer-based suicidal ideation assessment linked to automated response team notification in an HIV primary care setting,” Clinical Infectious Diseases, vol. 50, no. 8, pp. 1165–1173, 2010. View at Publisher · View at Google Scholar · View at Scopus
  18. R. L. Spitzer, K. Kroenke, and J. B. Williams, “Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary Care Evaluation of Mental Disorders. Patient Health Questionnaire,” Journal of the American Medical Association, vol. 282, no. 18, pp. 1737–1744, 1999. View at Publisher · View at Google Scholar
  19. C. J. Portillo, W. L. Holzemer, and F.-Y. Chou, “HIV symptoms,” Annual Review of Nursing Research, vol. 25, pp. 259–291, 2007. View at Google Scholar · View at Scopus
  20. K. Bush, D. R. Kivlahan, M. B. McDonell, S. D. Fihn, and K. A. Bradley, “The AUDIT alcohol consumption questions (AUDIT-C): an effective brief screening test for problem drinking,” Archives of Internal Medicine, vol. 158, no. 16, pp. 1789–1795, 1998. View at Publisher · View at Google Scholar · View at Scopus
  21. D. A. DeWalt, N. Rothrock, S. Yount, and A. A. Stone, “Evaluation of item candidates: the PROMIS qualitative item review,” Medical Care, vol. 45, no. 5, supplement 1, pp. S12–S21, 2007. View at Publisher · View at Google Scholar · View at Scopus
  22. P. A. Pilkonis, S. W. Choi, S. P. Reise, A. M. Stover, W. T. Riley, and D. Cella, “Item banks for measuring emotional distress from the patient-reported outcomes measurement information system (PROMIS): depression, anxiety, and anger,” Assessment, vol. 18, no. 3, pp. 263–283, 2011. View at Publisher · View at Google Scholar · View at Scopus
  23. C. Christodoulou, D. U. Junghaenel, D. A. DeWalt, N. Rothrock, and A. A. Stone, “Cognitive interviewing in the evaluation of fatigue items: results from the patient-reported outcomes measurement information system (PROMIS),” Quality of Life Research, vol. 17, no. 10, pp. 1239–1246, 2008. View at Publisher · View at Google Scholar · View at Scopus
  24. M. George, R. Pinilla, S. Abboud, J. A. Shea, and C. Rand, “Innovative use of a standardized debriefing guide to assist in the development of a research questionnaire with low literacy demands,” Applied Nursing Research, vol. 26, no. 3, pp. 139–142, 2013. View at Publisher · View at Google Scholar · View at Scopus
  25. J. G. Grzywacz, T. Alterman, C. Muntaner, S. Gabbard, J. Nakamoto, and D. J. Carroll, “Measuring job characteristics and mental health among latino farmworkers: results from cognitive testing,” Journal of Immigrant and Minority Health, vol. 11, no. 2, pp. 131–138, 2009. View at Publisher · View at Google Scholar · View at Scopus
  26. M. C. Rosal, E. T. Carbone, and K. V. Goins, “Use of cognitive interviewing to adapt measurement instruments for low-literate Hispanics,” The Diabetes Educator, vol. 29, no. 6, pp. 1006–1017, 2003. View at Publisher · View at Google Scholar
  27. G. I. Lopez, M. Figueroa, S. E. Connor, and S. L. Maliski, “Translation barriers in conducting qualitative research with Spanish speakers,” Qualitative Health Research, vol. 18, no. 12, pp. 1729–1737, 2008. View at Publisher · View at Google Scholar · View at Scopus
  28. K. A. Hepner, L. S. Morales, R. D. Hays, M. O. Edelen, and J. Miranda, “Evaluating differential item functioning of the PRIME-MD mood module among impoverished black and white women in primary care,” Women's Health Issues, vol. 18, no. 1, pp. 53–61, 2008. View at Publisher · View at Google Scholar · View at Scopus
  29. J. A. Teresi, A. L. Stewart, L. S. Morales, and S. M. Stahl, “Measurement in a multi-ethnic society: overview to the special issue,” Medical Care, vol. 44, no. 11, supplement 3, pp. S3–S4, 2006. View at Publisher · View at Google Scholar · View at Scopus