|
Item no. | ZBI care burden questions | Mean | SD | Variance |
|
B1 | Do you feel that your child needs more help than he/she needs? | 3.07 | 1.03 | 1.07 |
B2 | Do you feel that you don’t have enough time for yourself because of the child? | 1.48 | 1.30 | 1.70 |
B3 | Do you feel stressed caring for the child and trying to meet other responsibilities for your family or work? | 2.43 | 1.32 | 1.75 |
B4 | Do you feel embarrassed about your child’s condition? | 0.75 | 1.17 | 1.37 |
B5 | Do you feel angry when you are with your child? | 0.76 | 1.10 | 1.20 |
B6 | Do you feel that your child negatively affects your relationships with other family members or friends? | 0.89 | 1.29 | 1.67 |
B7 | Are you afraid of what the future holds for your child? | 1.88 | 1.52 | 2.31 |
B8 | Do you feel your child is dependent on you? | 3.46 | 0.79 | 0.63 |
B9 | Do you feel strained when you are around your child? | 0.55 | 1.04 | 1.10 |
B10 | Do you feel your health has suffered because of your involvement with your child? | 1.33 | 1.31 | 1.72 |
B11 | Do you feel that you don’t have as much privacy as you would like because of your child? | 0.86 | 1.22 | 1.50 |
B12 | Do you feel that your social life has suffered because you are caring for your child? | 0.59 | 1.13 | 1.28 |
B13 | Do you feel uncomfortable about having friends because of your child? | 0.53 | 1.17 | 1.36 |
B14 | Do you feel that your child seems to expect you to take care of him/her as if you were the only one he/she could depend on? | 3.38 | 0.96 | 0.92 |
B15 | Do you feel that you don’t have enough money to take care of your child in addition to the rest of your expenses? | 1.23 | 1.45 | 2.09 |
B16 | Do you feel that you will be unable to take care of your child much longer? | 1.52 | 1.43 | 2.06 |
B17 | Do you feel you have lost control of your life since your child’s illness? | 0.64 | 1.09 | 1.18 |
B18 | Do you wish you could leave the care of your child to someone else? | 1.12 | 1.36 | 1.84 |
B19 | Do you feel uncertain about what to do about your child? | 1.34 | 1.41 | 1.98 |
B20 | Do you feel you should be doing more for your child? | 3.58 | 0.69 | 0.48 |
B21 | Do you feel you could do a better job of caring for your child? | 3.02 | 1.16 | 1.34 |
B22 | Overall, how burdened do you feel? | 2.50 | 1.23 | 1.52 |
|