Review Article
Comparison of Informal Care Time and Costs in Different Age-Related Dementias: A Review
Table 1
Studies characteristics.
| | Studies | Countries | Year | Dementia criteria | Severity criteria | Care setting | Age (mean year) | Sample size | Number of caregivers | Informal care measure instrument | Activity type | Number of patients using informal care | Followup (months) |
| | Rigaud et al. [13] | France | 2003 | NINCDS-ADRDA | MMSE | Home | 80.50 | 48 | >1 | Questionnaire | ADL, IADL, supervision | NS | 6 | | Souêtre et al. [14] | UK | 1999 | NINCDS-ADRDA | MMSE | Home | 79.13 | 128 | 1 | Questionnaire | NS | NS | NS | | Souêtre et al. [15] | France | 1995 | NINCDS-ADRDA | MMSE | Home | 65.95 | 51 | 1 | Questionnaires | NS | NS | 3 | | Jönsson et al. [16] | Europe | 2006 | NS | MMSE | Home and institution | 75.90 | 204 | NS | RUD | ADL, IADL, supervision | NS | NS | | Mesterton et al. [17] | Sweden | 2010 | NS | MMSE | Home and institution | 79.50 | 233 | NS | RUD | ADL, IADL, Supervision | NS | 12 | |
Cavallo and Fattore [18] | Italy | 1997 | NS | APA | Home | 73.60 | 423 | NS | Questionnaire | ADL, IADL, supervision | NS | NS | | Coduras et al. [19] | Spain | 2009 | NINCDS-ADRDA | CDR | Home and institution | 76.70 | 560 | NS | RUD | ADL, IADL, supervision | NS | NS | AD | Bastida et al. [20] | Spain | 2006 | NS | CDR | Home | 75.50 | 237 | >1 | Questionnaire | ADL | NS | 12 | | Max et al. [21] | USA | 1995 | NS | MMSE | Home and institution | 78.00 | NS | >1 | Calendar | ADL, IADL, supervision | NS | 12 | | Rice et al. [22] | USA | 1993 | NS | MMSE | Home and institution | NS | 187 | >1 | Calendar | ADL, IADL, supervision | NS | 12 | | Hux et al. [23] | Canada | 1998 | NS | MMSE | Home and institution | NS | 948 | NS | Questionnaire | ADL, IADL, supervision | NS | 6 | |
Leon and Neumann [24] | USA | 1999 | NS | MMSE | Home | 79.4 | 150 | NS | Questionnaire | ADL, IADL | NS | 12 | | Schnaider Beeri et al. [25] | Israel | 2002 | NS | MMSE | Home and institution | [76.40; 81.50] | 121 | >1 | Questionnaire | ADL, IADL, supervision | NS | 6 | | Zencir et al. [26] | Turkey | 2005 | NS | MMSE | Home | 70.50 | 42 | 1 | Daily Time sheet | ADL | NS | 0.5 | | Allegri et al. [27] | Argentina | 2006 | NINCDS-ADRDA | MMSE | Home and institution | 74.50 | 100 | 1 | Question-naire | NS | NS | 3 |
| | Findley et al. [28] | UK | 2010 | NS | Hoehn and Yarh | Home and institution | 71.70 | 302 | NS | Questionnaire | NS | NS | 5 | | Keränen et al. [29] | Finland | 2003 | NS | Hoehn and Yarh | Home | 66.50 | 258 | NS | Questionnaire | NS | 36% | 12 | PD | Winter et al. [30] | Czech Republic | 2003 | NS | NS | Home | 63.60 | 100 | NS | Questionnaire | NS | NS | 6 | | Whetten-Goldstein et al. [31] | USA | 1997 | NS | NS | Home | 71.77 | 168 | 1 | Questionnaire | | 34% | 12 | | Winter et al. [32] | Russie | 2009 | UKPDS | Hoehn and Yarh | Home | 68.90 | 100 | NS | Questionnaire | NS | 42% | 6 |
| VD | Wimo and Winblad [33] | Sweden | 2003 | NS | NS | Home and institution | NS | NS | NS | RUD | ADL, IADL, supervision | NS | 12 |
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1: several caregivers. AD: Alzheimer disease; PD; Parkinson disease. RUD: Resource Utilization in Dementia; ADL: activities of daily living; IADL: instrumental activities of daily living. NS: not specified.
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