Health-Related Quality of Life in Children and Adolescents with Hereditary Bleeding Disorders and in Children and Adolescents with Stroke: Cross-Sectional Comparison to Siblings and Peers
Table 1
Basic sociodemographic characteristics of all study participants with complete KINDL-R questionnaires, .
Variable
Patients
Healthy controls
Patients with HBD ()
Stroke or TIA ()
Siblings ()
Peers ()
Female gender, (%)
11 (14.9%)
44 (62.9%)
17 (65.4%)
37 (34.9%)
Age in years, mean ± SD
Number of siblings
0
20 (27.0%)
6 (8.6%)
0 (0%)
10 (9.4%)
1
30 (40.5%)
34 (48.6%)
18 (69.2%)
45 (42.5%)
2
17 (23.0%)
24 (34.3%)
5 (19.2%)
40 (37.7%)
3 or more
7 (9.5%)
4 (5.7%)
3 (11.5%)
7 (6.6%)
Missing data
0 (0%)
2 (2.9%)#
0 (0%)#
4 (3.8%)
Education
Primary school
31 (41.9%)
25 (35.7%)
9 (34.6%)
61 (57.5%)
Secondary modern school
18 (24.3%)
19 (27.1%)
9 (34.6%)
19 (17.9%)
Secondary school
22 (29.7%)
12 (17.1%)
7 (26.9%)
23 (21.7%)
Special school
3 (4.1%)
10 (14.3%)
0 (0%)
1 (0.9%)
Missing data
0 (0%)
4 (5.7%)#
1 (3.8%)#
2 (1.9%)#
KINDL-R: revised KINDer Lebensqualitätsfragebogen; HBD: hereditary bleeding disorders (36 patients with hemophilia A and hemophilia B, 22 patients with von Willebrand disease type 2 and type 3, 5 patients with hereditary fibrinogen deficiency, and 9 patients with factor V, VII, and XI deficiency); TIA: transient ischemic attack; # does not sum up to 100% due to rounding errors.
