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BioMed Research International
Volume 2016, Article ID 7859725, 8 pages
Research Article

The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care

1London South Bank University, 103 Borough Road, London SE1 0AA, UK
2Kent Kidney Care Centre, East Kent Hospitals University NHS Foundation Trust, Canterbury, UK
3Barts Health NHS Trust, London, UK
4Patient and Carer Group, Barts Health NHS Trust, London, UK

Received 1 August 2016; Accepted 20 October 2016

Academic Editor: Houry Puzantian

Copyright © 2016 Nicola Thomas et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


Introduction. This qualitative descriptive study was designed to understand the experiences of older people (>70 years) when making a decision about renal replacement therapy. This was a coproduced study, whereby patients and carers were involved in all aspects of the research process. Methods. A Patient and Carer Group undertook volunteer and research training. The group developed the interview questions and interviewed 29 people who had commenced dialysis or made a decision not to have dialysis. Interview data were transcribed and analysed, and common themes were identified. Results. 22 men and 7 women (mean age 77.4 yrs) from two hospitals were interviewed. 18 had chosen haemodialysis, 6 peritoneal dialysis, and 5 supportive care. The majority of patients were involved in the dialysis decision. Most were satisfied with the amount of information that they received, although some identified that the quality of the information could be improved, especially how daily living can be affected by dialysis. Conclusion. Our findings show that overall older patients were involved in the dialysis decision along with their families. Our approach is innovative because it is the first time that patients and carers have been involved in a coproduced study about shared decision-making.