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BioMed Research International
Volume 2016, Article ID 7859725, 8 pages
http://dx.doi.org/10.1155/2016/7859725
Research Article

The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care

1London South Bank University, 103 Borough Road, London SE1 0AA, UK
2Kent Kidney Care Centre, East Kent Hospitals University NHS Foundation Trust, Canterbury, UK
3Barts Health NHS Trust, London, UK
4Patient and Carer Group, Barts Health NHS Trust, London, UK

Received 1 August 2016; Accepted 20 October 2016

Academic Editor: Houry Puzantian

Copyright © 2016 Nicola Thomas et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. Right Care, Decision Aids, 2012, http://sdm.rightcare.nhs.uk/pda/established-kidney-failure/.
  2. M. A. Murray, G. Brunier, J. O. Chung et al., “A systematic review of factors influencing decision-making in adults living with chronic kidney disease,” Patient Education and Counseling, vol. 76, no. 2, pp. 149–158, 2009. View at Publisher · View at Google Scholar · View at Scopus
  3. Kings Fund, Making shared decision making a reality: no decision about me, without me, http://www.kingsfund.org.uk/sites/files/kf/Making-shared-decision-making-a-reality-paper-Angela-Coulter-Alf-Collins-July-2011_0.pdf.
  4. A. Coulter and J. Ellins, “Effectiveness of strategies for informing, educating, and involving patients,” British Medical Journal, vol. 335, no. 7609, pp. 24–27, 2007. View at Publisher · View at Google Scholar · View at Scopus
  5. A. Edwards and G. Elwyn, “Inside the black box of shared decision making: distinguishing between the process of involvement and who makes the decision,” Health Expectations, vol. 9, no. 4, pp. 307–320, 2006. View at Publisher · View at Google Scholar · View at Scopus
  6. J. Moustakas, P. N. Bennett, J. Nicholson, and S. Tranter, “The needs of older people with advanced chronic kidney disease choosing supportive care: a review,” Renal Society of Australasia Journal, vol. 8, no. 2, pp. 70–75, 2012. View at Google Scholar · View at Scopus
  7. R. L. Morton, A. Tong, K. Howard, P. Snelling, and A. C. Webster, “The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies,” British Medical Journal, vol. 340, no. 7742, article c112, p. 350, 2010. View at Publisher · View at Google Scholar · View at Scopus
  8. W. Levinson, A. Kao, A. Kuby, and R. A. Thisted, “Not all patients want to participate in decision making: a national study of public preferences,” Journal of General Internal Medicine, vol. 20, no. 6, pp. 531–535, 2005. View at Publisher · View at Google Scholar · View at Scopus
  9. P. Rosén, A. Anell, and C. Hjortsberg, “Patient views on choice and participation in primary health care,” Health Policy, vol. 55, no. 2, pp. 121–128, 2001. View at Publisher · View at Google Scholar · View at Scopus
  10. E. Murray, L. Pollack, M. White, and B. Lo, “Clinical decision-making: patients' preferences and experiences,” Patient Education and Counseling, vol. 65, no. 2, pp. 189–196, 2007. View at Publisher · View at Google Scholar · View at Scopus
  11. L. J. Blackhall, S. T. Murphy, G. Frank, V. Michel, and S. Azen, “Ethnicity and attitudes toward patient autonomy,” Journal of the American Medical Association, vol. 274, no. 10, pp. 820–825, 1995. View at Publisher · View at Google Scholar · View at Scopus
  12. J. D. Tariman, D. L. Berry, B. Cochrane, A. Doorenbos, and K. G. Schepp, “Physician, patient, and contextual factors affecting treatment decisions in older adults with cancer and models of decision making: a literature review,” Oncology Nursing Forum, vol. 39, no. 1, pp. E70–E83, 2012. View at Publisher · View at Google Scholar · View at Scopus
  13. C. Needham and S. Carr, SCIE Research Briefing 31: Co-Production: An Emerging Evidence Base for Adult Social Care Transformation, Social Care Institute for Excellence, London, UK, 2009.
  14. Mental Health Research Network and INVOLVE, Budgeting for Involvement: Practical Advice on Budgeting for Actively Involving the Public in Research Studies, Mental Health Research Network, London and INVOLVE, Eastleigh, UK, 2013.
  15. R. Newell, “The structured interview,” Nurse Researcher, vol. 1, no. 3, pp. 14–20, 1994. View at Publisher · View at Google Scholar
  16. C. Earnley, “A reflection on the use of semi-structured interviews,” Nurse Researcher, vol. 13, no. 1, pp. 19–28, 2005. View at Google Scholar
  17. D. Stacey, F. Légaré, S. Pouliot, J. Kryworuchko, and S. Dunn, “Shared decision making models to inform an interprofessional perspective on decision making: a theory analysis,” Patient Education and Counseling, vol. 80, no. 2, pp. 164–172, 2010. View at Publisher · View at Google Scholar · View at Scopus
  18. I. Holloway and S. Wheeler, Qualitative Research in Nursing and Health Care, Wiley-Blackwell, Oxford, UK, 2009.
  19. V. Braun and V. Clarke, “Using thematic analysis in psychology,” Qualitative Research in Psychology, vol. 3, no. 2, pp. 77–101, 2006. View at Publisher · View at Google Scholar · View at Scopus
  20. K. Staley, Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research, National Institute for Health Research, 2009.
  21. J. Gilg, F. Caskey, and D. Fogarty, “UK renal registry 18th annual report: chapter 1 UK renal replacement therapy incidence in 2014: national and centre-specific analyses,” Nephron, vol. 132, supplement 1, pp. 9–40, 2016. View at Google Scholar
  22. K. Staley, “‘Is it worth doing? Measuring the impact of patient and public involvement in research,” Research Involvement and Engagement, vol. 1, no. 1, article 6, 2015. View at Publisher · View at Google Scholar
  23. M.-K. Song and S. E. Ward, “The extent of informed decision-making about starting dialysis: does patients’ age matter?” Journal of Nephrology, vol. 27, no. 5, pp. 571–576, 2014. View at Publisher · View at Google Scholar · View at Scopus
  24. L. Harwood and A. M. Clark, “Understanding pre-dialysis modality decision-making: a meta-synthesis of qualitative studies,” International Journal of Nursing Studies, vol. 50, no. 1, pp. 109–120, 2013. View at Publisher · View at Google Scholar · View at Scopus
  25. L. Harwood and A. M. Clark, “Dialysis modality decision-making for older adults with chronic kidney disease,” Journal of Clinical Nursing, vol. 23, no. 23-24, pp. 3378–3390, 2014. View at Publisher · View at Google Scholar · View at Scopus
  26. H. Noble and J. Smith, “Issues of validity and reliability in qualitative research,” Evidence-Based Nursing, vol. 18, no. 2, pp. 34–35, 2015. View at Publisher · View at Google Scholar · View at Scopus
  27. J. Brett, S. Staniszewska, C. Mockford et al., “Mapping the impact of patient and public involvement on health and social care research: a systematic review,” Health Expectations, vol. 17, no. 5, pp. 637–650, 2014. View at Publisher · View at Google Scholar · View at Scopus
  28. W. Darawsheh, “Reflexivity in research: promoting rigour, reliability and validity in qualitative research,” International Journal of Therapy & Rehabilitation, vol. 21, no. 12, pp. 560–568, 2014. View at Publisher · View at Google Scholar · View at Scopus
  29. L. K. Rooney, R. Bhopal, L. Halani et al., “Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma,” Journal of Public Health, vol. 33, no. 4, pp. 604–615, 2011. View at Publisher · View at Google Scholar · View at Scopus
  30. A. W. Williams, “Older adults with CKD and acute kidney failure: do we know enough for critical shared decision making?” Journal of the American Society of Nephrology, vol. 25, no. 1, pp. 5–8, 2014. View at Publisher · View at Google Scholar · View at Scopus