The Portuguese Severe Asthma Registry: Development, Features, and Data Sharing Policies

Table 1

European Registries of Severe Asthma, a noncomprehensive review.

Registry name	Country	Year of release	Promoting Society	Website	Patients included	No. of centers	Sources / published studies
United Kingdom Severe Asthma Registry	United Kingdom	2006	British Thoracic Society	https://www.brit-thoracic.org.uk/standards-of-care/lung-disease-registries/	>500	8	[13–22]
Belgian Severe Asthma Registry	Belgium	2008	Belgische Vereniging voor Pneumologie / Société Belge de Pneumologie	http://www1.citobi.be/SAR/Welcome_en.act	>350	9	[23, 24]
Register Schweres Asthma	Germany	2011	German Asthma Net e.V.	http://www.german-asthma-net.de	>100	17	[25, 26]
Banco de Datos de Asma	Spain	<2012	Sociedad Española de Neumologia y CirurgiaToracica	https://www.separ.es/?q=node/71	>290	30	[27, 28]
Austrian Severe Asthma Net	Austria	2012	Austrian Severe Asthma Net (ASA-Net)	http://www.asa-net.at/register/	>80	16	[29]
Severe/Uncontrolled Asthma Registry	Italy	2014	Italian Severe Asthma Network (SANI).	http://www.sani-asma.org	>400	63	[30, 31]
Registry of Adult Patients with Severe asthma for Optimal Disease management	Netherlands	2016	Academisch Medisch Centrum (Prof. dr. E.H.D. Bel)	https://www.zonmw.nl/nl/; over-zonmw/innovatie-in-de-zorg/programmas/; project-detail/goed-gebruik-geneesmiddelen/registry-of-; adult-patients-with-severe-asthma-for-optimal-; disease-managementrapsodi/verslagen/	>20	3	[32]
Registo de Asma Grave Portugal	Portugal	2018	Rede de Especialistas em Asma Grave	https://www.asmagrave.pt/	Release planned for 2nd trimester of 2018	31	-