Research Article
Association between Participants’ Characteristics, Patient-Reported Outcomes, and Clinical Outcomes in Youth with Sickle Cell Disease
Table 1
Participants’ characteristics.
| | Characteristics | Study cohort (N=34) |
| | Age (years), median (interquartile range) | 13.5 (12 – 18) | | Male, n (%) | 20 (59) | | Race/Ethnicity, n (%) | | | African American | 31 (91) | | Hispanics or Latino | 3 (9) | | Genotype, n (%) | | | HbSS | 29 (85.3) | | HbSC | 3 (8.8) | | HbSB0 | 2 (5.9) | | Indication for hydroxyurea, n (%) | | | Recurrent pain | 18 (52.9) | | Recurrent acute chest syndrome | 2 (5.9) | | Recurrent pain and acute chest syndrome | 9 (26.5) | | Others (poor growth, abnormal transcranial Doppler, or cerebrovascular accident) | 5 (14.7) |
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