Research Article
Patient-Reported Experiences in Voxelotor-Treated Children and Adults with Sickle Cell Disease: A Semistructured Interview Study
Table 1
Sociodemographic information for adults and adolescents.
| | Adult and adolescent characteristic | Sample (); (%) | | Sex | | | Male | 8 (35) | | Female | 15 (65) | | Age (years) | | | Mean (SD) | 23 (7.4) | | Range | 13-39 | | Race/ethnicity | | | Black/African American | 22 (96) | | Latinx | 1 (4) |
| | Highest level of education completed | Total () | Adolescents () | Adults () | | Less than high school | 6 (26) | 6 (26) | 0 | | High school/GED | 9 (39) | 1 (4) | 8 (35) | | Some college | 2 (9) | 0 | 2 (9) | | Bachelor’s degree | 2 (9) | 0 | 2 (9) | | Not answered | 4 (17) | 0 | 4 (17) |
| | Employment status | Total () | Adolescents () | Adults () | | Unemployed | 2 (9) | 0 | 2 (9) | | Student | 8 (35) | 7 (30) | 1 (4) | | Employed part-time | 4 (17) | 0 | 4 (17) | | Employed full-time | 5 (22) | 0 | 5 (22) | | Not answered | 4 (17) | 0 | 4 (17) |
| | Time on voxelotor (years) | | | Mean (SD) | 0.7 (0.47) | | Range | 0.25-1.7 |
| | Baseline hemoglobin | | | Mean (SD) | 8.4 (1.5) | | Range | 5.9-12.2 |
| | Recent hemoglobin | | | Mean (SD) | 9.2 (1.5) | | Range | 6.7-11.5 |
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GED: General Education Diploma; SD: standard deviation.
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