Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis

Table 2

Informal care burden scores.

(a) Objective burden score (informal care time, )

	Patient-caregiver pairs (count)	Mean; (SD; range [min–max]); Hours/day
Patient-caregiver pairs with no ICT	19	0
Patient-caregiver pairs with ICT^a	77	6.5 (8.2; 0.07–24)
ICT tasks (subgroup)
ICT-ADL	44	2.1 (1.7; 0.03–6)
ICT-IADL	76	1.79 (1.6; 0.06–6)
ICT-ST	34	9.6 (9.6; 0.33–24)

(b) Subjective burden score (Zarit Burden Inventory, )

	Caregivers (count)	Mean; (SD; range [min–max])
Caregivers’ ZBI	96	27.3 (19.9; 0–80)
ZBI severity (subgroup)
Mild	44	9.6 (5.7; 0–20)
Mild to moderate	25	30.0 (4.7; 21–37)
Moderate to severe	21	48.9 (6.1; 41–59)
Severe	6	69.7 (7.3; 61–80)

Patients receiving help from an informal caregiver for ADL and/or IADL and/or ST.
Note: ICT: informal care time; ADL: Activities of Daily Living; IADL: Instrumental Activities of Daily Living; ST: Supervision Time; SD: standard deviation.