| | Frame | Categories | Codes |
| | Characteristics and consequences of epilepsy | Concealing/disclosing epilepsy | Hiding/concealing epilepsy, uncontrolled epilepsy disclosure, concealing an episode, controlling information, controlling information disclosure, limited circle of persons aware of the epilepsy, confidentiality, and startling one’s environment | | Epilepsy consequences | Physical: losing control over one’s body, frightening symptoms, epilepsy unpredictability, difficult epilepsy management, and character change
Emotional: epilepsy as punishment, fear of epilepsy heredity, emotional distress, distress escalation related to familiarisation with the epilepsy, loss of control, fear of an episode, concern, insecurity, distrust as defensive mechanism, feeling deprived, and concern due to epilepsy unpredictability
Social: barrier to starting a family, partnership idiosyncrasy, distress due to opinions of others, concern regarding motherhood, influence of the epilepsy on finding a partner, self-confinement, concern of friends and family, and family recognition of the burden of epilepsy |
| | PWE social contacts and relationships | PWE experience and social network | Epilepsy disclosure related remorse, information disclosure related relief, positive experience of disclosure, negative experience of disclosure, hiding the epilepsy due to previous negative experience, disclosure distress, fear of consequences related to epilepsy concealment, and wish to disclose |
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