|
Instrument | Patient report | Proxy report | Domains | Items | Measurement | Brief summary |
|
Quality of Life in Alzheimer’s Disease (QOL-AD) | Yes | Yes | Physical health Mental health Social and functional domains | 13 (15 for proxy version) | Four-point scale score Range 13–52 for patient report and range 15–60 for proxy report Higher scores equal to higher QoL | The best researched of all the dementia measurement scales Relatively brief Suitable for mild to severe dementia |
Dementia Quality of Life questionnaire (DEMQOL) | Yes | Yes | Daily activities and looking after self Health and well-being Cognitive functioning Social relationships Self-concept | 28 (31 for proxy version) | Four-point scale score Range 28–112 for patient report and range 31–124 for proxy report Higher scores equal to higher QoL | The conceptual framework is based on health-related QoL, with less social relevance The proxy version performed well in psychometric tests Suitable for mild to moderate dementia |
EuroQol 5-dimension (EQ-5D-5L) | Yes | No | 1st part: Mobility Hygiene Usual activities Pain/discomfort Anxiety/depression 2nd part: Visual analogue scale (VAS) | No | 1st part: having no problems for 1, having slight problems for 2, having moderate problems for 3, having severe problems for 4, and being unable to do/having extreme problems for 5 2nd part: 0 for worst; 100 for best health status | A generic, preference-based instrument for health related QoL The 5-digit number for 5 domains can be converted into a single weighted index score Appropriate in people with mild to moderate dementia |
Short Form-36 (SF-36) | Yes | No | Vitality Physical functioning Bodily pain General health perceptions Physical role functioning Emotional role functioning Social role functioning Mental health | 36 | One score in each domain, calculated by special software, representing weighted sums of the questions (0 equivalent to maximum disability; 100 equivalent to no disability) | A generic health status measure A shorter version, SF-12, was developed to minimize respondent burden if only physical and mental health summary scores are of interest |
|