Research Article
Assessment of School Readiness in Chronic Cholestatic Liver Disease: A Pilot Study Examining Children with and without Liver Transplantation
| | | LT | NL | | (%) | (%) |
| | Gender | | | | Female | 8 (61) | 4 (80) | | Age at testing | 4.45 (3.03–6.97) | 4.07 (3.47–6.26) | | Median, range [years] | | Race | | | | White | 6 (46) | 2 (40) | | Black | 1 (7) | | | Asian | 3 (23) | 3 (60) | | Others/not known | 3 (23) | | | Diagnosis | | | | Biliary Atresia | 13 (100) | 4 (80) | | Alpha 1 antitrypsin | | 1 (20) | | Mean body mass index at time of testing (range) | 16.7 (14.4–20.8) | 16.58 (15.3–17.3) | | Attending school/daycare | 11 (85) | 3 (60) | | Maternal education | | | | High school graduate | 5 (38) | 1 (20) | | Postsecondary | 4 (30) | 4 (80) | | Postgraduate | 2 (15) | 0 | | Not available | 2 (15) | | | Annual family income | | | | Under $50,000 | 2 (15) | 3 (60) | | $50,001–$80,000 | 1 (7) | 2 (40) | | Over $80,001 | 7 (54) | 0 | | Not available | 3 (23) | | | Type of immunosuppression | | | | Tacrolimus | 11 (85%) | | | Sirolimus | 2 (15%) | | | # of rehabilitation service visits | | | | 1–3 | 8 (62%) | | | 4–7 | 2 (15%) | | | >7 | 1 (7) | | | Age at transplant | | | | <12 months | 7 (54%) | | | 12–23 months | 6 (46%) | | | Type of transplant | | | | Whole | 1 (8%) | | | Reduced | 1 (8%) | | | Split | 2 (15%) | | | Live donor | 9 (69%) | | | Mean bilirubin at transplant (micromole/L) (range) | 45.5 (0–131) | | | Mean total days in hospital, before transplant (range) | 48.7 (0–172) | | | Mean total days in hospital, after transplant (range) | 65.3 (15–223) | | | Mean total days in hospital (range) | 114 (0–223) | 16.75 (5–25) | | | At time of transplant | At time of testing | | Mean weight (kg) (range) | 8.17 (4.78–13.93) | 16.18 (14.7–17.6) | | Mean INR (range) | 1.4 (1–1.9) | 0.94 (0.9–1) | | Mean albumin levels (g/L) (range) | 29 (22–36) | 44.6 (37–49) | | Medications (number of patients) | | | | URSO | | 80% (4) | | Septra | | 80% (4) |
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