Evaluating Community Engagement Strategies to Manage Stigma in Two African Genomics Studies Involving People Living with Schizophrenia or Rheumatic Heart Disease

Table 1

Experiences of alienation and stigma resistance drawn from the Internalised Stigma of Mental Illness (ISMI) Scale.

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Alienation

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Q1. I feel out of place in the world because I have schizophrenia/a heart disease

Q2. Having schizophrenia/a heart disease has spoiled my life

Q3. People without schizophrenia/heart disease could not possibly understand me

Q4. I am embarrassed or ashamed that I have schizophrenia/a heart disease

Q5. I am disappointed in myself for having schizophrenia/a heart disease

Q6. I feel inferior to others who don’t have schizophrenia/a heart disease

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Stigma Resistance

Q25. I feel comfortable being seen in public with a person who obviously has schizophrenia/heart disease

Q26. In general, I am able to live life the way I want to

Q27. I can have a good, fulfilling life, despite my schizophrenia/heart disease

Q28. People with schizophrenia/heart disease make important contributions to society

Q29. Living with schizophrenia/heart disease has made me a tough survivor

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