The Emerging Adult with Inflammatory Bowel Disease: Challenges and Recommendations for the Adult Gastroenterologist
Table 3
Patient core-competencies for success after transition to adult care.
Medical knowledge
Disease-specific knowledge including the following: Personal disease history (diagnosis, extent, location, and prior surgeries) Medication history (including adverse effects) General information on IBD natural history Disease activity and issues of reproductive health Effect of diet, smoking, and use of NSAIDs Importance of preventive health including immunizations
Health literacy
A patient’s ability to obtain, process, and understand basic health information in order to do the following: Navigate the healthcare system Access preventive health services Communicate with healthcare providers Analyze risks and benefits of treatment Interpret tests results Mindfully consume available health-related information
Self-management
Health promoting behaviors including the following examples: Recognition of disease flare and extraintestinal manifestations Adherence to complex medication regimen (e.g., self-injectable and rectally administered therapy) Ostomy care Smoking cessation Calling for medication refills Scheduling clinic visits
Self-efficacy
A belief in one’s ability to organize and execute behaviors necessary to manage challenging situations
