Parental Reports of Stigma Associated with Child’s Disorder of Sex Development
Table 7
Reported stigma in DSD compared to parents of children with epilepsy.
How strongly do you agree or disagree with these comments?
DSD sample, mothers (n = 96)
Chronic epilepsy samplea (n = 171)
New-onset seizures samplea (n = 210)
M (SD)
M (SD)
ES
M (SD)
ES
People who know that my child has a urogenital (seizure) condition treat him/her differently
1.76 (0.88)
2.65 (1.13)
<.001*
−0.88
3.00 (1.99)
<.001*
−0.81
It really doesn’t matter what I say to people about my child’s urogenital (seizure) condition, they usually have their minds made up
2.29 (1.13)
2.68 (1.13)
.007*
−0.35
3.12 (2.01)
<.001*
−0.51
bBecause of the urogenital (seizure) condition, my child will have problems in finding a boyfriend or girlfriend (husband or wife).
2.47 (1.13)
1.98 (0.93)
.060
0.47
1.50 (1.08)
.001*
0.88
In many people’s minds, having a urogenital (seizure) condition attaches a stigma or label to my child
2.8 (1.29)
3.28 (1.16)
.002*
−0.39
3.70 (2.07)
<.001*
−0.52
Reference [30] ; bitem appeared in Study 2 only (n = 15; child age range 8–16 years) value associated with comparison of DSD and epilepsy sample. *Denoting P values that remain statistically significant after set-wise Bonferroni correction (or that are <.05 when correction not needed).