Research Article

Parental Reports of Stigma Associated with Child’s Disorder of Sex Development

Table 7

Reported stigma in DSD compared to parents of children with epilepsy.

How strongly do you agree or disagree with these comments?DSD sample, mothers
(n = 96)
Chronic epilepsy samplea
(n = 171)
New-onset seizures samplea
(n = 210)
M (SD)M (SD)ESM (SD)ES

People who know that my child has a urogenital (seizure) condition treat him/her differently1.76 (0.88)2.65 (1.13) <.001* −0.88 3.00 (1.99)<.001* −0.81
It really doesn’t matter what I say to people about my child’s urogenital (seizure) condition, they usually have their minds made up 2.29 (1.13)2.68 (1.13) .007* −0.35 3.12 (2.01) <.001* −0.51
bBecause of the urogenital (seizure) condition, my child will have problems in finding a boyfriend or girlfriend (husband or wife).2.47 (1.13)1.98 (0.93) .060 0.47 1.50 (1.08) .001* 0.88
In many people’s minds, having a urogenital (seizure) condition attaches a stigma or label to my child 2.8 (1.29)3.28 (1.16) .002* −0.39 3.70 (2.07) <.001* −0.52

Reference [30] ; bitem appeared in Study 2 only (n = 15; child age range 8–16 years) value associated with comparison of DSD and epilepsy sample.
*Denoting P values that remain statistically significant after set-wise Bonferroni correction (or that are <.05 when correction not needed).