Table 3: Support needs of the patients. Data are presented as frequency and valid percent (%).

VariableUS ()Germany () value

Stages at the course of the disease patients wished for more support (multiple answers possible)
Before therapy53 (63.1)32 (45.1)0.035
In weeks directly after therapy36 (42.9)26 (36.6)0.511
Within the first year after the start of therapy38 (45.2)30 (42.3)0.747
Never2 (2.4)9 (12.7)0.024
Current interest in different kinds of supportive offers (multiple answers possible)
In-person support group43 (51.2)24 (33.8)0.035
Webinar/online forum45 (53.6)28 (39.4)0.106
Lectures29 (34.5)31 (43.7)0.253
Courses on coping with the illness41 (48.8)19 (26.8)0.008
Seminars or workshops31 (36.9)13 (18.6)0.019
Leaflets/brochures17 (20.2)32 (45.1)0.001
Educational offers for the family29 (34.5)8 (11.4)0.001
Others††12 (14.3)7 (10.1)0.472
No interest5 (6.0)9 (12.9)0.166