Research Article
Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA
Table 3
Support needs of the patients. Data are presented as frequency and valid percent (%).
| Variable | US () | Germany () | value |
| Stages at the course of the disease patients wished for more support (multiple answers possible) | | | | Before therapy | 53 (63.1) | 32 (45.1) | 0.035 | In weeks directly after therapy | 36 (42.9) | 26 (36.6) | 0.511 | Within the first year after the start of therapy | 38 (45.2) | 30 (42.3) | 0.747 | Never | 2 (2.4) | 9 (12.7) | 0.024 | | | | — | Current interest in different kinds of supportive offers (multiple answers possible) | | | | In-person support group | 43 (51.2) | 24 (33.8) | 0.035 | Webinar/online forum | 45 (53.6) | 28 (39.4) | 0.106 | Lectures | 29 (34.5) | 31 (43.7) | 0.253 | Courses on coping with the illness | 41 (48.8) | 19 (26.8) | 0.008 | Seminars or workshops | 31 (36.9) | 13 (18.6) | 0.019 | Leaflets/brochures | 17 (20.2) | 32 (45.1) | 0.001 | Educational offers for the family | 29 (34.5) | 8 (11.4) | 0.001 | Others†† | 12 (14.3) | 7 (10.1) | 0.472 | No interest | 5 (6.0) | 9 (12.9) | 0.166 |
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