International Journal of Genomics

International Journal of Genomics / 2003 / Article

Conference review | Open Access

Volume 4 |Article ID 424586 | https://doi.org/10.1002/cfg.333

Anne Cambon-Thomsen, Pascal Ducournau, Pierre-Antoine Gourraud, David Pontille, "Biobanks for Genomics and Genomics for Biobanks", International Journal of Genomics, vol. 4, Article ID 424586, 7 pages, 2003. https://doi.org/10.1002/cfg.333

Biobanks for Genomics and Genomics for Biobanks

Received21 Aug 2003
Revised25 Aug 2003
Accepted10 Sep 2003

Abstract

Biobanks include biological samples and attached databases. Human biobanks occur in research, technological development and medical activities. Population genomics is highly dependent on the availability of large biobanks. Ethical issues must be considered: protecting the rights of those people whose samples or data are in biobanks (information, autonomy, confidentiality, protection of private life), assuring the non-commercial use of human body elements and the optimal use of samples and data. They balance other issues, such as protecting the rights of researchers and companies, allowing long-term use of biobanks while detailed information on future uses is not available. At the level of populations, the traditional form of informed consent is challenged. Other dimensions relate to the rights of a group as such, in addition to individual rights. Conditions of return of results and/or benefit to a population need to be defined. With ‘large-scale biobanking’ a marked trend in genomics, new societal dimensions appear, regarding communication, debate, regulation, societal control and valorization of such large biobanks. Exploring how genomics can help health sector biobanks to become more rationally constituted and exploited is an interesting perspective. For example, evaluating how genomic approaches can help in optimizing haematopoietic stem cell donor registries using new markers and high-throughput techniques to increase immunogenetic variability in such registries is a challenge currently being addressed. Ethical issues in such contexts are important, as not only individual decisions or projects are concerned, but also national policies in the international arena and organization of democratic debate about science, medicine and society.

Copyright © 2003 Hindawi Publishing Corporation. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


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