Research Article

An International, Web-Based, Prospective Cohort Study to Determine Whether the Use of ACE Inhibitors prior to the Onset of Scleroderma Renal Crisis Is Associated with Worse Outcomes—Methodology and Preliminary Results

Table 1

Baseline characteristics of cohort (N = 76).

Mean (SD) age, years (SD)53.3 (12.4)

Women, (%)52 (68.4)

Ethnic groups, (%)
  White55 (72.4)
  Black12 (15.8)
  Asian4 (5.3)
  Hispanic3 (4.0)
  Native American2 (2.6)

Disease subsets, (%)
  Diffuse disease52 (68.4)
  Limited disease19 (25.0)
  Sine scleroderma5 (6.6)

Disease duration (since first non-Raynaud’s symptom)
  Median disease duration, years (IQR)1.47 (0.87,  4.21)
  Number (%) with disease duration 1 year24 (32)

Countries of origin of study subjects,
  Australia2
  Belgium1
  Brazil1
  Canada13
  Denmark2
  Dominican Republic1
  France2
  Germany2
  Ghana1
  Greece1
  Haiti2
  Hungary3
  Israel1
  Italy2
  Korea1
  Norway3
  Pakistan3
  Poland1
  Spain2
  Switzerland2
  The Netherlands1
  Turkey3
  USA26