Methodology Report
Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research
Table 1
Representative sample of variables collected in KAYAC case and parent questionnaires.
| | Case (birth–early childhood) | Case | Case (at diagnosis) | Mother | Mother Prenatal | Father | Father Prenatal | Extended family |
| Demographics | | | | | | | | | Race/ethnicity | | X | | X | | X | | X | Marital status | | X | | X | | X | | | Date of birth | | X | | X | X | X | X | | Date of death (if applicable) | | | | X | | X | | X | Religious affiliation | | X | | X | | X | | X | Birthplace | | X | | X | | X | | X |
| Cancer information | | | | | | | | | History of cancer | | X | | X | | X | | X | Cancer type and histology | | X | | X | | X | | X | Date/age of diagnosis | | X | | X | | X | | X | Hospital of diagnosis | | X | | X | | X | | X |
| Social and economic status (SES) | | | | | | | | | Education | X | X | | X | | X | | | Health insurance | X | X | X | | | | | | Income | | X | X (household) | | | | | | Risks, exposures, general health | | | | | | | | | General Health and Illnesses | X | X | | X | X | X | X | X | Height and weight | X | X | X | X | X | | | | Immunizations | X | X | | | X | | | | Medications and vitamins taken | X | X | | X | X | X | X | | Pesticide and chemical exposure | X | X | | X | X | X | X | | Radiation/X-ray exposure | X | X | | | X | | | | Animal exposure | X | | | | X | | | | International travel | | X | | | | | | | Occupational history | | X | | X | X | X | X | | Tobacco use | | X | | X | X | X | X | X | Alcohol use | | X | | | X | | | | Breastfeeding | X | | | | | | | | Reproductive history | | X | | X | X | | | |
| Other | | | | | | | | | Psychological/emotional well-being | | X | | | | | | | Social support | | X | | | | | | | Quality of life | | X | | | | | | |
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