Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research

Table 2

Participation by subject type.

Children (age 0–14)		AYA (age 15–39)
Total ascertained and agreed to be contacted	44	Total ascertained and contact was attempted	218
Participated in the study	29	Participated in the study	82
Agreed to be contacted but later declined participation	15	Unable to contact	87
—	—	Contacts were made but patient declined participation	33
		Deceased	16
Participation rate	65.9%	Participation rate (excluding deceased and UTC)	71.3%
Parents
Number of invited eligible parents		215
Participated in the study		135
Declined participation		46
Deceased		9
No permission given by the patient to contact the parent		25
Participation rate (excluding deceased)		65.5%