Journal of Cancer Epidemiology / 2009 / Article / Tab 2

Methodology Report

Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research

Table 2

Participation by subject type.

Children (age 0–14)AYA (age 15–39)

Total ascertained and agreed to be contacted44Total ascertained and contact was attempted218
Participated in the study29Participated in the study82
Agreed to be contacted but later declined participation15Unable to contact87
Contacts were made but patient declined participation33
Deceased16
Participation rate65.9%Participation rate (excluding deceased and UTC)71.3%
Parents
 Number of invited eligible parents215
 Participated in the study135
 Declined participation46
 Deceased9
 No permission given by the patient to contact the parent25
 Participation rate (excluding deceased)65.5%

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