Methodology Report
Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research
Table 2
Participation by subject type.
| Children (age 0–14) | AYA (age 15–39) |
| Total ascertained and agreed to be contacted | 44 | Total ascertained and contact was attempted | 218 | Participated in the study | 29 | Participated in the study | 82 | Agreed to be contacted but later declined participation | 15 | Unable to contact | 87 | — | — | Contacts were made but patient declined participation | 33 | Deceased | 16 | Participation rate | 65.9% | Participation rate (excluding deceased and UTC) | 71.3% | Parents | | |
Number of invited eligible parents | 215 |
Participated in the study | 135 |
Declined participation | 46 |
Deceased | 9 |
No permission given by the patient to contact the parent | 25 |
Participation rate (excluding deceased) | 65.5% |
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