Participant Experiences in the Environmental Determinants of Diabetes in the Young Study: Common Reasons for Withdrawing
Table 2
Active withdrawals by child’s age of withdrawal and demographic factors, maternal psychosocial factors, and maternal study satisfaction.
Factors
All 3–36 m ()
Year 1 3–6 m (row %) or mean (SD)
Year 1 9–12 m (row %) or mean (SD)
Year 2 15–24 m (row %) or mean (SD)
Year 3 27–36 m (row %) or mean (SD)
value
Number of active withdrawals
1549
584 (37.7)
324 (20.9)
431 (27.8)
210 (13.6)
Country of residence
Finland
349
106 (30.4)
69 (19.8)
122 (35.0)
52 (14.9)
Sweden
453
167 (36.9)
92 (20.3)
130 (28.7)
64 (14.1)
Germany
124
37 (29.8)
36 (29.0)
38 (30.6)
13 (10.5)
US
623
274 (44.0)
127 (20.4)
141 (22.6)
81 (13.0)
<0.001
Gender
Female
811
323 (39.8)
159 (19.6)
232 (28.6)
97 (12.0)
Male
738
261 (35.4)
165 (22.4)
199 (27.0)
113 (15.3)
0.07
First degree relative with T1D
No
1433
534 (37.3)
302 (21.1)
406 (28.3)
91 (13.3)
Yes
116
50 (43.1)
22 (19.0)
25 (21.6)
19 (16.4)
0.30
Maternal age at child’s birth
years
29.4 (5.6)
28.9 (5.8)
29.0 (5.2)
29.6 (5.5)
30.9 (5.5)
<0.001
Highly anxious at last visit (SAI > 48)a
No
1241
413 (33.3)
259 (20.9)
375 (30.5)
191 (15.4)
Yes
229
116 (50.7)
55 (24.0)
45 (19.7)
13 (5.7)
<0.001
Worry about diabetes at last visita,b
Never or rarely
706
104 (14.7)
166 (23.5)
290 (41.4)
144 (20.4)
Sometimes or very often
344
56 (16.3)
114 (33.1)
113 (33.4)
59 (17.2)
0.004
Risk perception at last visita
Underestimate
692
247 (35.7)
147 (21.2)
207 (30.1)
90 (13.0)
Accurate
783
283 (36.1)
170 (21.7)
213 (27.5)
115 (14.7)
0.63
Study satisfaction at last visita,b
Very satisfied
276
38 (13.8)
77 (27.9)
108 (39.1)
53 (19.2)
Satisfied
289
44 (15.2)
87 (30.1)
99 (34.3)
59 (20.4)
Somewhat satisfied
274
39 (14.2)
71 (25.9)
115 (42.0)
49 (17.9)
Neutral or dissatisfied
208
38 (18.3)
44 (21.2)
84 (40.4)
42 (20.2)
0.47
If no measure last visit, the second to last visit is taken if available. bStudy satisfaction and worry about diabetes are not asked in the first questionnaires so there are fewer available answers at 3 and 6 months.
