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Mapped area of literature | Context | Mechanism | Explanatory concept cultural competency (CC), stratification (S), access (A) | Outcome |
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Age and South Asian ethnicity in diabetes research and policy: demography and inequality | (i) No specific focus on age and ethnicity in the research literature (ii) National frameworks and nonspecific guidelines (iii) Local level focus for interventions: community, family, primary care | (i) Cultural adaptation within services, for example, link workers (ii) Targeting cultural & social factors, for example, families, diet (iii) Ethnicity as risk factor for inequality in access | (i) CC (ii) CC, S (iii) CC, S, A | (i) Modest impacts to date, not cost effective: difficult to do & complex (ii) Cultural and social determinants can influence motivation & support for self-management (iii) Researching inequalities to include age dimension |
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South Asians and earlier onset of diabetes and complications | (i) Earlier onset of diabetes and complications (ii) Primary/secondary care interrelations (iii) National frameworks for quality diabetes & kidney care | (i) Quality initiatives for diabetes care in primary care (ii) Use of ethnicity data, referral patterns, progression rates (iii) System wide & pathway interventions | (i) CC, A (ii) CC, S (iii) CC, S, A | (i) Earlier diagnosis (ii) Improved diabetes care: monitoring & referral patterns (iii) Contested/better understanding quality improvements in relation to holistic diabetes care |
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South Asian ethnicity, heterogeneity, cardiovascular disease | (i) Heterogeneity within ethnicity (ii) Socioeconomic associations (iii) Diversity of outcomes as basis of individualised care | (i) Practice based research into stratification within diabetes populations (ii) Tailored approaches to diabetes & complications care | (i) S (ii) S, CC | (i) Targeted care (ii) Improved understanding of ethnicity influences (iii) Tackling the biological with the sociological |
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Diabetes and complications affecting older South Asian people | (i) Age and high prevalence of diabetes comorbidities & complications (ii) Early onset, increased risk, faster progression (iii) Extended timeframe of care | (i) System approaches: care pathway & disease trajectories (ii) Improved identification of comorbidities, for example, dementia & depression in older people with South Asian background | (i) S, A (ii) S | (i) Shift in the way we think about diabetes and ageing (ii) Prevention, identification, treatment & end of life care across different settings |
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Delivering quality diabetes care and prevention of complications in UK South Asian population | (i) Person centred care & assessment of need (ii) Quality care includes knowledge & information for patients (iii) Lack of evidence about cultural aspects of self-management (iv) More evidence which includes South Asian ethnicity required | (i) Cultural flexibility within care (ii) Improving access by better identification through screening (iii) Integrated care as part of a holistic and whole coordinated approach | (i) CC, A (ii) A, S (iii) S, A | (i) Better understanding of the different elements of diabetes care (ii) Access increased through combined and system wide approaches. |
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Researching the experience of older South Asian people with diabetes in and across different settings | (i) Lack of research involving South Asian patients (ii) Reliance on studies of ethnicity in kidney services (iii) Broader social and psychological contexts of care | (i) Culturally competent practice and research to redress inequalities in access & in research participation | (i) CC, A | (i) Improved understanding of patient experience so that care is effective and meaningful for all patients. |
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