Measuring the Quality of Life in Diabetic Patients: A Scoping Review
Table 1
QOL scales structures and broad domains.
Name
Scale
Broad domains
First publintdcation year
No. of items
Subscales/domains
Population (, language, diabetes type)
Development purpose
Physical health
Mental health
Social health
Life satisfaction/beliefs
Environment
Asian diabetes quality of life questionnaire (AsianDQOL) [26]
2015
21
Financial; diet; memory and cognition; energy; relationship
136 (English version), English-Chinese-Malay, Type 2
QOL assessment in multiethnic/multilanguage Asian populations
Energy/fatigue
Memory, mood
Relationships, intimacy
Activities
Policies (financial burden)
Audit of diabetes-dependent quality of life (ADDQOL-19) [27]
1999
19
Employment/career; social life; family relationships; friendships; sex life; sport/leisure; travel; future (own); future (family); motivation; do physically; others fuss
152, English
Patient-centered assessment of diabetes impact on QOL (both research and clinical practice)
Energy/fatigue
Distress
Relationships, social engagement, intimacy
Recreation, activities
Societal attitudes
Diabetes diet-related quality of life revised (DDRQOL-R) [28]
2017
17
Satisfaction with diet; burden of diet therapy; perceived merits of diet therapy
184 (115 test-retest), Japanese
Assessment of the effect of dietary therapy on daily lifestyle and QOL
Attitude (towards diet)
Social engagement (diet-related)
Satisfaction (diet-related)
Policies (financial burden)
Diabetes diet-related quality of life revised—short form (DDRQOL-R-9) [28]
2017
9
Satisfaction with diet; burden of diet therapy; perceived merits of diet therapy
Same sample as DDRQOL-R
Short version of DDRQOL-R more feasible for clinical purposes
Relationship with medical professionals; support from friends and family; knowledge of the disease; lifestyle changes; exercising; self-monitoring;uncertainty about a consultation; medication; insulin-use
853, cross-country (Estonia, France, Belgium, Serbia, Slovenia, Turkey)
Assessment of diabetes-related QOL addressing a variety of obstacles
Distress
Relationships
Activities
Access to services (healthcare), societal attitude
Emotional suffering; social functioning; adherence to the treatment regimen; diabetes-specificsymptoms
402, Korean
QOL assessment
Sick/well
Mood, distress
Relationships
Recreation, activities
Diabetes quality of life brief clinical inventory (DQOL-Brief) [33]
2004
15
498, English
Treatment-focused QOL assessment in clinical practice
Pain, sick/well, rest
Distress
Relationships, intimacy
Satisfaction, activities
Societal attitude
Diabetes Quality of Life Clinical Trials Questionnaire, Revised (DQLCTQ-R) [34]
1999
57
Physical function; energy/fatigue; health issues; mental health; DQOL satisfaction; DQOL impact; DQOL social worry; DQOL diabetes worry; worry (Hypoglycemia Fear Survey); treatment satisfaction; treatment flexibility; social stigma; frequency of symptoms; bothersomeness of symptoms
942 cross-country (Canada, France, Germany, US)
QOL assessment in multinational clinical trials
Sick/well, stamina, energy/fatigue, pain
Distress, mood, emotional regulation
Social engagement, relationships, intimacy, discrimination
Activities, satisfaction, recreation
Societal attitude
Diabetes-specific quality of life questionnaire module (DMQOL) [35]
2017
10
170, Chinese (available also in English)
Diabetes-specific module to be used along with WHOQOL-BREF
Relationships, social engagement
Activities, satisfaction, recreation
Policies (financial burden), societal attitude
Diabetes therapy-related quality of life (DTR-QOL) [36]
2012
29
Burden on social activities and daily activities; anxiety and dissatisfaction with treatment; hypoglycemia; satisfaction with treatment
284, Japanese
Assessment of influence of treatment on patients’ QOL
Pain, sick/well
Distress
Relationships, social engagement
Activities, satisfaction (general and with treatment)
The Japanese insulin-dependent diabetic patient quality of life scale (JAPID-QOL) [40]
2011
19
Diabetes status-related; support of family or community-related; social acceptance-related
105, Japanese, Type 1
QOL assessment in clinical trials with beta cell replacement therapy
Sick/well, rest
Distress
Relationships
Satisfaction (with treatment), activities
Societal attitude
The patient-reported outcomes instrument for Thai patients with Type 2 diabetes mellitus (PRO-DM-Thai) [41]
2015
44
Physical function; symptoms; psychological well-being; self-care management; social well-being; global judgments of health; satisfaction with care and flexibility of treatment
500 (study 1), 200 (study 2), Thai, Type 2
Tool for healthcare providers to investigate treatment outcomes
Sick/well
Distress, mood
Relationships, social engagement
Satisfaction, activities
Access to services (healthcare, public transport)
The ViDa questionnaire for Type 1 diabetes (ViDa1) [42]
2017
34
Interference in life; self-care; well-being; worry about the disease
578, Spanish, Type 1
QOL assessment in both research and clinical practice
