Uses, Limitations, and Validity of a Registry of Congenital Anomalies in Iran: A Critical Review
Table 1
Prevalence (in 10,000 births) of selected congenital anomalies in 13 ICBDSR registries.
Selected congenital anomalies
Australia: WARDA
Canada
France: Paris
Germany: Saxony-Anhalt
India
Iran: Tabriz
Italy: Tuscany
Japan
Malta
Saudi Arabia
South America
Ukraine
USA: Texas
Anencephaly
5.5
1.2
4.9
2.0
11.8
10.7
1.5
0.7
1.5
10.1
5.8
7.0
2.7
Spina bifida
5.7
3.2
5.2
5.2
11.8
1.4
3.9
5.6
8.4
2.0
8.5
10.4
3.9
Cleft palate without cleft lip
10.2
6.4
6.4
5.9
1.7
8.4
3.3
5.1
14.3
2.0
4.5
7.2
5.9
Encephalocele
2.1
0.7
2.2
1.4
2.5
1.0
1.0
0.5
1.9
2.0
3.3
1.8
1.0
Microcephaly
3.8
3.7
2.4
11.7
1.4
4.5
0.6
1.6
4.5
12.1
4.8
5.9
12.9
Hydrocephaly
7.7
4.7
14.4
4.6
8.9
13.8
3.4
7.8
1.9
12.1
17.2
5.3
7.2
Cleft lip with or without cleft palate
10.8
9.4
8.2
12.1
4.6
11.9
5.2
21.7
10.9
14.1
11.7
7.8
10.4
Undescended testis
39.5
34.4
NR
4.7
0.9
9.8
6.6
NR
NR
NR
9.8
31.6
13.7
Hypospadias
34.6
27.5
17.3
6.9
1.8
19.8
13.9
5.2
22.7
14.1
9.2
2.8
16.6
Limb reduction defects
7.0
3.3
6.1
7.7
4.2
51.0
4.2
3.8
7.4
4.0
7.6
4.8
6.0
Polydactyly
12.1
13.2
1.9
5.5
3.2
8.0
1.1
6.7
17.3
10.1
3.1
4.1
4.0
Tetralogy of fallot
2.9
3.4
4.1
2.8
0.4
1.4
2.3
7.0
2.9
6.0
1.6
2.7
3.9
Coarctation of aorta
4.3
4.5
3.8
5.4
0.1
2.9
2.3
6.7
3.5
2.0
0.5
1.7
5.2
Hypoplastic left heart syndrome
2.2
2.4
3.1
2.7
1.1
3.7
2.6
4.5
5.9
4.0
0.9
2.0
2.2
Notes. Data based on the annual report (2014) published by the International Clearinghouse for Birth Defects, Surveillance and Research (ICBDSR); Western Australian Register of Developmental Anomalies; data based on the annual report (2012) published by the International Clearinghouse for Birth Defects, Surveillance and Research (ICBDSR); Latin American Collaborative Study of Congenital Malformations; not Reported; for the details of the populations covered in each registry, please refer to the ICBDSR website at: <http://www.icbdsr.org>; registries in this table are listed in alphabetic order.
