Review Article

The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials

Table 1

Brief summary of the methodology, sample size (), and characteristics of participant population, PM materials, and PM results type used in the included articles.

CitationMethodologyParticipant population characteristicsPM materials assessedPM results type

Barajas et al. [20]Focus groups17Patients currently taking warfarinEducational tool developed as part of the study designHypothetical scenarios
Brewer et al. [23]Randomized trial133Patients with positive early stage breast cancer diagnosisResults developed as part of the study designHypothetical results
Giuse et al. [18]Randomized controlled trial88Patients with positive melanoma diagnosis or their caregiversEducational tools developed as part of the study designHypothetical results
Kaphingst et al. [19]Observational199Patients enrolled in health maintenance organizationResults developed from best practices in health literacyActual patient results
Leighton et al. [16]Observational145General publicCommercially available DTC reportHypothetical results
171Genetic counselors
Liang et al. [27]Interview16Patients with nonsmall cell lung cancerResults previously provided from molecular testingActual patient results
8Patients with melanoma
Olson et al. [26]Observational869Patients in the Mayo Clinic BiobankA summary and full report of pharmacogenomic test resultsActual patient results
Ostergen et al. [22]Observational1030Current consumers of personal genomic testingCommercially available DTC reportHypothetical results
Shaer et al. [24]Randomized controlled trial730General publicResults developed as part of the study designHypothetical results
Stuckey et al. [21]Semistructured interviews; focus groups9Parents of children enrolled in genome sequencing clinical research studyResults developed as part of the study designHypothetical results