Review Article

The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials

Table 2

Measurement definitions.

Knowledge metricsUnderstandabilityTrustPreferencePsychological reactions

Barajas et al. [20]Discussion about the content of the toolDiscussion about the content of the toolDiscussion about openness to testing

Brewer et al. [23]1. Gist recall: low/med/high risk
2. Verbatim recall: risk percentage
1. “How confident are you that you understand this test result?”
2. “How easy was this test result to understand?”
“How much do you trust that this test result is accurate?”Rank 6 formats from liked most to liked least

Giuse et al. [18]Before and after 10-question knowledge quiz about genetics, the disease, and the mutation

Kaphingst et al. [19]1. Free recall
2. Prompted recall
Likert-scale ratings of the deterministic nature of resultsLikert-scale ratings of the believability, reliability, completeness, helpfulness, difficulty, and accuracy of the informationAdapted Positive and Negative Affect Scale [25]

Leighton et al. [16]Specifics unavailable, compared perceived risk between general public and genetic counselorsSpecifics unavailableBelief that results would be helpful in deciding future medical managementLevel of concern

Liang et al. [27]Free recallDiscussion about understanding of somatic tumor screeningDiscussion about views, perceived advantages and disadvantages of somatic tumor screeningDiscussion about information and communication preferencesDiscussion about psychological support needs

Olson et al. [26]QuestionnaireQuestionnaireLikert-scale ratings of participant attitudes and usefulness of pharmacogenomics testingOpen-end questions about improvement of results letterQuestion about opening to encourage others to get pharmacogenomic testing

Ostergen et al. [22]Accuracy scoresLikert-scale ratings of the deterministic nature of resultsLikert-scale ratings of the believability, reliability, completeness, helpfulness, difficulty, and accuracy of the information

Shaer et al. [24]QuestionnaireQuestionnaireQuestionnaire

Stuckey et al. [21]Discussion and interview questions about the contentDiscussion about contentDiscussion about desire for Next Steps