Review Article

Donors and Recipients of Living Kidney Donation: A Qualitative Metasummary of Their Experiences

Table 1

Characteristics of studies included in the metasummary.

Authors YearReferenceResearch design/methodology Sample Study purpose/research question as reported by authors Country

Yi2003 [29] Grounded theory using semistructured interviews 14 living donors Explore what people experienced when deciding to donate a kidney and explore associated issues and concerned when they made their decisions Korea

Sanner 2003 [30] Follow-up interviews 3, 6, 12, and 24 months posttransplantation 12 heart recipients, 12 living-kidney recipients and 11 necro-kidney recipients To examine how organ recipients in late modernity conceived the special features that distinguish the transplantation from other treatments, namely, that vital, “living” organ are transferred from one human being (deceased or alive) to another Sweden

Franklin et al. 2003 [31] Retrospective semistructured interviews between 1 and 5 years after transplantation (phenomenological approach) 50 donors and partners and recipients and partners (study A) Not reported United Kingdom

Haljamäe 2003 [32] Qualitative interviews (phenomenographic approach) 10 living donors Assess and describe the remaining experiences of donors more than 3 years after early recipient graft loss or death of the recipient Sweden

Heck et al. 2004 [33] Case studies by catamnestic interviews with donors and recipients 31 donor-recipient dyad Examine the psychosocial effects of living donor kidney transplantation for donors and recipients under successful as well as complicated circumstances Germany

Walsh 2004 [34] Semi-structured interview (interpretative phenomenological analysis) 8 living related donors Explore psychological experience, motivation, and meaning associated with decision-making processes Ireland

Andersen et al. 2005 [35] Individual in depth interviews (empirical phenomenological method) 12 living donors Explore physical and psychosocial issues related to the experiences of living kidney donors 1 wk after open donor nephrectomy Norway

Sanner 2005 [36] Interviews the day before nephrectomy and 3 weeks afterwards 39 living donors Explore the donation process of a heterogeneous group of genetically and nongenetically related living kidney donors Sweden

Waterman et al. 2006 [37] Focus group methodology 26 recipients, 4 donors and 3 family members Understand the psychological barriers and educational needs of potential recipients regarding living donation United States

Crombie and Franklin 2006 [38] Ethnographic interviews 50 donors, recipients and nondonors Explore the family experience of live donation from psychological, social and cultural perspectives United Kingdom

Andersen et al. 2007 [39] Follow-up interviews (phenomenological approach) 12 living donors Explore experiences regarding physical and psychosocial health during the first year after donor surgery Norway

Brown et al. 2008 [40] Qualitative interviews (phenomenological approach) 12 living donors Explore living kidney donors' perceived experiences with the health care system from the period prior to being tested as a potential donor, through to postdonation discharge and followup Canada

Gill and Lowes 2008 [41] Interviews (phenomenological approach) 11 donor-recipient pairs To explore the experience of donors and recipients throughout the live transplantation process and the relevance of the theory of “gift exchange” as a framework for exploring and understand donors and recipients experiences of live transplantation England

Brown et al. 2008 [42] Semi-structured interviews (phenomenological approach) 12 living donors Gain a deeper understanding of the decision-making processes and psychosocial issues for living kidney donors Canada

Williams et al. 2009 [43] Grounded theory using interviews 18 living donors Explore and describe the experiences of persons who had donated a kidney within Western Australia Australia