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Multiple Sclerosis International
Volume 2013, Article ID 524894, 8 pages
http://dx.doi.org/10.1155/2013/524894
Review Article

Measuring the Quality of Life in Patients with Multiple Sclerosis in Clinical Practice: A Necessary Challenge

1EA3279, Self-Perceived Health Assessment Research Unit, School of Medicine, Aix-Marseille University, 27 Boulevard Jean Moulin, 13385 Marseille Cedex 05, France
2Department of Neurology, Timone University Hospital, 27 Boulevard Jean Moulin, 13385 Marseille Cedex 05, France

Received 14 November 2012; Revised 7 January 2013; Accepted 5 February 2013

Academic Editor: Rob Bermel

Copyright © 2013 Karine Baumstarck et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Citations to this Article [24 citations]

The following is the list of published articles that have cited the current article.

  • Giuseppe Magistrale, Ugo Nocentini, Rossella Medori, Diego Cadavid, Ornella Argento, Chiara Incerti, Valerio Pisani, Carlo Caltagirone, Marco Bozzali, and John DeLuca, “Assessing clinical correlates of self-rated disability in patients with multiple sclerosis.,” Multiple sclerosis journal - experimental, translational and clinical, vol. 1, pp. 2055217315592425, . View at Publisher · View at Google Scholar
  • Prue E. Morgan, Sze-Ee Soh, and Jennifer L. McGinley, “Health-related quality of life of ambulant adults with cerebral palsy and its association with falls and mobility decline: a preliminary cross sectional study,” Health and Quality of Life Outcomes, vol. 12, 2014. View at Publisher · View at Google Scholar
  • Stephen Moster, James A. Wilson, Steven L. Galetta, and Laura J. Balcer, “The King-Devick (K-D) Test of Rapid Eye Movements: A Bedside Correlate of Disability and Quality of Life in MS,” Journal of the Neurological Sciences, 2014. View at Publisher · View at Google Scholar
  • Robert W. Motl, and Edward McAuley, “Physical Activity and Health-Related Quality of Life Over Time in Adults With Multiple Sclerosis,” Rehabilitation Psychology, vol. 59, no. 4, pp. 415–421, 2014. View at Publisher · View at Google Scholar
  • Xavier Y Zendjidjian, Pascal Auquier, Christophe Lançon, Anderson Loundou, Nathalie Parola, Melanie Faugère, and Laurent Boyer, “Determinants of patient satisfaction with hospital health care in psychiatry: results based on the SATISPSY-22 questionnaire.,” Patient preference and adherence, vol. 8, pp. 1457–64, 2014. View at Publisher · View at Google Scholar
  • Marie-Christine Rousseau, Karine Baumstarck, Marine Alessandrini, Véronique Blandin, Thierry Billette de Villemeur, and Pascal Auquier, “Quality of life in patients with locked-in syndrome: Evolution over a 6-year period,” Orphanet Journal of Rare Diseases, vol. 10, no. 1, 2015. View at Publisher · View at Google Scholar
  • Rana Karabudak, Maurice Dahdaleh, Mohammed Aljumah, Raed Alroughani, I. Ahmed Alsharoqi, Abdulrahman M. AlTahan, Saeed A. Bohlega, Abdulkader Daif, Dirk Deleu, Amer Amous, Jihad S. Inshasi, Peter Rieckmann, Mohammed A. Sahraian, and Bassem I. Yamout, “Functional clinical outcomes in multiple sclerosis: Current status and future prospects,” Multiple Sclerosis And Related Disorders, vol. 4, no. 3, pp. 192–201, 2015. View at Publisher · View at Google Scholar
  • Pierre Michel, Pascal Auquier, Karine Baumstarck, Jean Pelletier, Anderson Loundou, Badih Ghattas, and Laurent Boyer, “Development of a cross-cultural item bank for measuring quality of life related to mental health in multiple sclerosis patients,” Quality of Life Research, 2015. View at Publisher · View at Google Scholar
  • Alicia S. Chua, Bonnie I. Glanz, Anthony J. Guarino, Sandra L. Cook, Emily E. Greeke, Grace E. Little, Tanuja Chitnis, and Brian C. Healy, “Patient-reported outcomes in multiple sclerosis: Relationships among existing scales and the development of a brief measure,” Multiple Sclerosis And Related Disorders, vol. 4, no. 6, pp. 598–606, 2015. View at Publisher · View at Google Scholar
  • X. Y. Zendjidjian, P. Auquier, C. Lancon, A. Loundou, N. Parola, M. Faugere, and L. Boyer, “The SATISPSY-22: Development and validation of a French hospitalized patients' satisfaction questionnaire in psychiatry,” European Psychiatry, vol. 30, no. 1, 2015. View at Publisher · View at Google Scholar
  • Barbara G. Vickrey, Liesly Lee, Fraser Moore, and Patrick Moriarty, “ EDSS Change Relates to Physical HRQoL While Relapse Occurrence Relates to Overall HRQoL in Patients with Multiple Sclerosis Receiving Subcutaneous Interferon β -1a ,” Multiple Sclerosis International, vol. 2015, pp. 1–6, 2015. View at Publisher · View at Google Scholar
  • Maarten Arends, Carla Hollak, and Marieke Biegstraaten, “Quality of life in patients with Fabry disease: a systematic review of the literature,” Orphanet Journal of Rare Diseases, vol. 10, no. 1, pp. 77, 2015. View at Publisher · View at Google Scholar
  • Ipek Ensari, Robert W. Motl, and Edward McAuley, “Structural and construct validity of the Leeds Multiple Sclerosis Quality of Life scale,” Quality Of Life Research, vol. 25, no. 6, pp. 1605–1611, 2016. View at Publisher · View at Google Scholar
  • Pierre Michel, Karine Baumstarck, Badih Ghattas, Jean Pelletier, Anderson Loundou, Mohamed Boucekine, Pascal Auquier, and Laurent Boyer, “A Multidimensional Computerized Adaptive Short-Form Quality of Life Questionnaire Developed and Validated for Multiple Sclerosis The MusiQoL-MCAT,” Medicine, vol. 95, no. 14, 2016. View at Publisher · View at Google Scholar
  • Pierre Kalfon, Olivier Mimoz, Anderson Loundou, Marie-Agnes Geantot, Nathalie Revel, Isabelle Villard, Julien Amour, Elie Azoulay, Maite Garrouste-Orgeas, Claude Martin, Tarek Sharshar, Karine Baumstarck, and Pascal Auquier, “Reduction of self-perceived discomforts in critically ill patients in French intensive care units: study protocol for a cluster-randomized controlled ,” Trials, vol. 17, 2016. View at Publisher · View at Google Scholar
  • Farideh Kamran, Afshin Samaei, Nabiollah Asghari, Soheila Bayat, Azadeh Naeiji, Fatemeh Farrokhnezhad, and Amir Hoshang Bakhtiary, “The Associations Between Fatigue, Disability, and Mobility and the Quality of Life in Patients with Multiple Sclerosis,” Middle East Journal of Rehabilitation and Health, vol. 3, no. 1, 2016. View at Publisher · View at Google Scholar
  • Dena Sadeghi Bahmani, Serge Brand, Markus Gerber, Nadeem Kalak, Sakari Lemola, Peter J Clough, Pasquale Calabrese, Vahid Shaygannejad, Uwe Pühse, and Edith Holsboer-Trachsler, “Mental toughness, sleep disturbances, and physical activity in patients with multiple sclerosis compared to healthy adolescents and young adults.,” Neuropsychiatric disease and treatment, vol. 12, pp. 1571–9, 2016. View at Publisher · View at Google Scholar
  • Marie-Christine Rousseau, Karine Baumstarck, Thierry Billette de Villemeur, and Pascal Auquier, “Evaluation of quality of life in individuals with severe chronic motor disability: A major challenge,” Intractable & Rare Diseases Research, 2016. View at Publisher · View at Google Scholar
  • Peter Joseph Jongen, “Health-Related Quality of Life in Patients with Multiple Sclerosis: Impact of Disease-Modifying Drugs.,” CNS drugs, vol. 31, no. 7, pp. 585–602, 2017. View at Publisher · View at Google Scholar
  • Joana Urbano, Pedro Nogueira, Ana Paula Rocha, and Henrique L. Cardoso, “Analysis of Data Science Tools for Sensor-Based Assessment of Quality of Life in Health Care,” Recent Advances in Information Systems and Technologies, vol. 569, pp. 446–455, 2017. View at Publisher · View at Google Scholar
  • Peter Joseph Jongen, Wim A Lemmens, Erwin L Hoogervorst, and Rogier Donders, “Glatiramer acetate treatment persistence - but not adherence - in multiple sclerosis patients is predicted by health-related quality of life and self-efficacy: a prospective web-based patient-centred study (CAIR study).,” Health and quality of life outcomes, vol. 15, no. 1, pp. 50, 2017. View at Publisher · View at Google Scholar
  • Liye Zou, Huiru Wang, ZhongJun Xiao, Qun Fang, Mark Zhang, Ting Li, Geng Du, and Yang Liu, “Tai chi for health benefits in patients with multiple sclerosis: A systematic review,” Plos One, vol. 12, no. 2, pp. e0170212, 2017. View at Publisher · View at Google Scholar
  • Teng I. Leong, Tracey J. Weiland, George A. Jelinek, Steve Simpson, Chelsea R. Brown, Sandra L. Neate, Keryn L. Taylor, Emily O'Kearney, Elasma Milanzi, and Alysha M. De Livera, “Longitudinal Associations of the Healthy Lifestyle Index Score With Quality of Life in People With Multiple Sclerosis: A Prospective Cohort Study,” Frontiers in Neurology, vol. 9, 2018. View at Publisher · View at Google Scholar
  • Riwanti Estiasari, Syarly Melani, A. A. A. Agung Kusumawardhani, David Pangeran, Yuhyi Fajrina, Kartika Maharani, and Darma Imran, “Validation of the Indonesian version of multiple sclerosis quality of life-54 (MSQOL-54 INA) questionnaire,” Health and Quality of Life Outcomes, vol. 17, no. 1, 2019. View at Publisher · View at Google Scholar