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Multiple Sclerosis International
Volume 2014, Article ID 529878, 7 pages
Research Article

Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden

1The Swedish Institute for Health Economics, Box 2127, 220 02 Lund, Sweden
2Merck Serono Sweden, Merck AB, Box 3033, 169 03 Solna, Sweden

Received 10 October 2013; Accepted 19 November 2013; Published 4 March 2014

Academic Editor: Angelo Ghezzi

Copyright © 2014 Marianne Svensson and Liberty Fajutrao. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden.