Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden

Table 3

Formal and informal care per home care user.

	Proportion with help	Quantity per home care user during recall period
	%	Mean	95% CI
Formal care	Hours per month
(Home help services and/or personal assistance)	27%	238.7	203.9–243.5
By disease severity
Mild (EDSS 0–3)	1%	4	—
Moderate (EDSS 4–6)	9%	38	−6.0–82.0
Severe (EDSS ≥ 6.5)	60%	267	228.4–304.8
Informal care	49%	47.3
Type
Service		29.0
Personal care		12.9
Transport		5.4
By disease severity
Mild (EDSS 0–3)	19%	14	11.5–17.6
Moderate (EDSS 4–6)	55%	27	22.2–31.9
Severe (EDSS ≥ 6.5)	68%	70	57.1–83.3
	Days per year
Caregivers sick leave	5%	8.4	6.3–10.6
	Hours per week
Caregivers changed working hours	3%	15.8	11.6–20.0