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Nursing Research and Practice
Volume 2013, Article ID 749563, 9 pages
http://dx.doi.org/10.1155/2013/749563
Research Article

Enhancing the Participation of African Americans in Health-Related Genetic Research: Findings of a Collaborative Academic and Community-Based Research Study

1University of Wisconsin-Milwaukee College of Nursing, 1921 E Hartford Avenue, P.O. Box 413, Cunningham Hall, Room 422/423, Milwaukee, WI 53201, USA
2University of Wisconsin-Milwaukee College of Nursing, Center for Nursing Research and Evaluation, WI 53201, USA

Received 5 June 2013; Revised 28 August 2013; Accepted 3 October 2013

Academic Editor: Jacquelyn Taylor

Copyright © 2013 Sandra Millon Underwood et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

The involvement of African Americans in research has long been expressed as a concern by the scientific community. While efforts have been undertaken to identify factors inhibiting the participation of African Americans in health-related research, few efforts have been undertaken to have highlight factors associated with their engagement of health-related research. An exploratory study of factors presumed to be associated with participation in health-related research was conducted among a nonprobability sample of African Americans ( ) from a large urban community in the Midwest. The study was guided by a framework that hypothesized the influence of knowledge, beliefs, and perceptions about genetics and the involvement of providers in decision-making on willingness to participate in health-related genetic research. The results revealed that knowledge, beliefs, and perceptions about genetics and the involvement of providers were associated with willingness to engage in health-related genetic research ( ). The most interesting, however, was that 88.7% of the participants who had not previously been involved in a health-related study who expressed a willingness to participate reported that they “had never been asked.” Study findings suggest the need for research that further examines factors associated with the involvement of African Americans in health-related genetic research.